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Anyone had tonsil removal on the NHS as an adult? re tonsil stones

12 replies

pumpastrotter · 29/11/2018 12:35

Would appreciate any help! I was wondering whether anybody has had a tonsillectomy as an adult on the NHS and how it came about?

In the past couple of months I've seemed to have developed/discovered tonsil stones (BOKE) and they are coming non stop and they STINK (seem to miraculously avoided the colon breath but I'm very self-conscious as it is and eat mints throughout the day) I have really pitted tonsils thanks to numerous cases of serious tonsillitis as a teen; I was told about 6 years ago I had no tonsils at all as they had completely rotted away. I had very bad hand, foot and mouth a couple of years ago which was hell on my throat so I don't know whether this made the crypts worse?

I started getting tonsillitis several times a year from around the age of 12 and was hospitalised a few times it was so severe; I was pinballed over the next 5 years being told if it happens again they will remove them/I was too old and they refused to operate. I still get several throat infections a year but nothing a pack of strepsils doesn't fix, but since finding these stones I have been picking and digging and probably causing some damage as they have bled (not badly) and I have had a bad throat/ears for 2 weeks on and off. These pits are also right in the very back/depths of my throat and really difficult to reach.

From what I've read, it doesn't seem likely I can get removal unless I go private but that is pushing 3K which is not doable in the foreseeable. The picking and obsessing is starting to take over my evenings and it's a misery (I have OCD related trichotillomania/dermatophagia so it's just wonderful that this is something else to pick at....) last night I spend 2 hours trying to gauge a swollen piece of tonsil Sad I've even started checking at work. My dental health is great, no issues and I brush/floss/mouthwash 2-3 times a day as it is. I really don't know how to approach the doctor about this, I know it's not an essential operation but it's starting to effect my daily life and possibly my health...It would be years before I could afford private.

OP posts:
redsummershoes · 29/11/2018 12:37

...I don't have tonsils, but still have pits and occassionally tonsil stones...

Lilpumpy · 29/11/2018 12:39

Stop picking at them!! You'll be introducing all kinds of bacteria and damaging them.

Gargle with salt water several times a day and visit your gp for advice

pumpastrotter · 29/11/2018 12:44

Lilpumpy I wish I could! It's a compulsion though, I physically cannot stop myself or I start getting worked up and lose my shit. Hand in hand with the skin picking/hair plucking. I have been using a syringe you get with calpol to flush them out with salt water/mouthwash but from judging what I'm still getting out it's not working very well. Not a fat lot I can do except see the doctor but I feel like I'm just going to be palmed off with 'leave them alone/we can't remove them'.

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BurningGubbins · 29/11/2018 12:48

My husband gets them. They get worse when he drinks a lot of coffee or has a lot of sugar in his diet - maybe try a preventative diet change?

pumpastrotter · 29/11/2018 12:48

I literally cannot stop thinking about them, I feel like my body has been violated (logically I know it's massively dramatic but it's genuinely how I feel, my mouth just feels constantly dirty)

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pumpastrotter · 29/11/2018 12:52

@BurningGubbins I drink one coffee a day in the morning and try to limit myself to one sugary snack a day (I have a sweet tooth but sugar makes my skin break out which I then start picking at) otherwise I drink water. I've also heard dairy makes them worse but I wouldn't say I eat huge amounts of that either except cheese with my lunch. I don't get them daily, but I do check - I'm probably getting some out 2 times a week.

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expatinspain · 29/11/2018 12:58

It's very difficult to get it on the NHS. Luckily I had BUPA. After being hospitalised twice for a Quincy throat and getting chronic tonsillitis around 3 or 4 times a year for most of my adult life, the NHS still wouldn't do it!

LostStars39 · 29/11/2018 12:59

I had similar to yourself, when I was younger I had tonsillitis several times a year every year. I went to the drs who said I could be booked in to have them removed, I then completely stopped getting tonsillitis!

Roll on a few years and I start getting really bad tonsil stones and a sore throat but no actual tonsillitis. I go back to the dr and say how much it’s affecting me as like you I obsessed over my tonsil stones!

They referred me to ENT clinic and I had them out on the nhs! Horrible recovery but so worth it x

butterry · 29/11/2018 12:59

I always struggled with tonsil stones still teenager. I would get them everyday! This is the tool I used to remove them without any damagewww.<a class="break-all" href="https://amazon.co.uk/Earlywish-Longer-Remover-attachments-Tonsillolith/dp/B019RT6JSG/ref=sr_1_9_a_it?keywords=tonsil%20remover&ie=UTF8&qid=1543496221&sr=8-9&tag=mumsnet&ascsubtag=mnforum-general-health-3437767-Anyone-had-tonsil-removal-on-the-NHS-as-an-adult-re-tonsil-stones" rel="nofollow" target="_blank">amazon.co.uk/Earlywish-Longer-Remover-attachments-Tonsillolith/dp/B019RT6JSG/ref=sr_1_9_a_it?ie=UTF8&qid=1543496221&sr=8-9&keywords=tonsil+remover
However this year I have cut out sugar and wheat completely (not dairy though) and my tonsil stones have completely gone. I actually can't remember the last time I had one which is incredible seeing as it was my daily routine to get rid of them

tryinganewname · 29/11/2018 13:04

Yes I had it at 24.

It came about as I'd had tonsillitis for 2 weeks which antibiotics hadn't touched. I went to my mums on Christmas Eve and she insisted we went to A&E - I'd not eaten and barely drank in over a week and couldn't even swallow without severe pain.

Got to A&E and they admitted me straight away for the tonsillitis and suspected glandular fever (which I didn't have after test results came back). I was there until the New Year and it was proposed that I had them removed due to the severity and how often I had tonsillitis, which was about 3 times a year. I had them taken out about 8 weeks after my hospital stay.

empmalswa · 29/11/2018 13:07

Tonsil stones is not a reason for a tonsillectomy.

pumpastrotter · 29/11/2018 13:17

They're truly awful, no wonder my ex called me dragon breath in the mornings! Blush
@expatinspain In all honesty I think if I'm still obsessing as bad in the new year I may look at getting a loan to get it done privately.

@LostStars39 that's given me some hope! I don't get quinsy, but I think given my history with the picking/digging they may be inclined to take it more seriously. I've heard the recovery is bad for adults but I really think it would be worth it.

@butterry I have a set currently on my amazon wishlist ready for payday! Interesting that your diet has made such a difference...I have next to no willpower with food though, I've already made a huge diet change this year to try and stop my skin breaking out. Not sure I could stick to no sugar/wheat but that being said I have a Keto plan for new year.

@tryinganewname I'm not sure whether I get reoccurring acute tonsillitis throughout the year or generic throat infections, I never bother going to the docs as it clears within a week. Glad they took yours straight out

@empmalswa I know....my reasoning is that I have OCD and they're effecting my daily life.

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