Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

How do I get copies of 18 year old blood tests and medical records?

8 replies

SofiaAmes · 23/11/2018 22:35

My ds has recently turned 18 and was diagnosed 8 years ago with a genetic disease which involves a lot of time being sick and in A&E. I have been putting all his records in order (now that he is an adult and has to manage it all himself in theory....). I found in his RedBook a reference to an abnormal TSH test shortly after birth and a request to have it repeated, but no record of the repeat test. The condition being tested for is one of many symptoms of his genetic disease and it may be helpful for ds (or for others with this disease to know some of the early markers), so I'd like to get the records.

How, and from whom do I request these and will they still exist 18 years later? And if so, from which department do I request them? Or do I ask the lab, or the ordering GP? Or some other national entity? And can I do this by email (as I am in the USA)?

I am also hoping to get his records from his dozens of A&E visits. Would the hospitals (2 of them) still have these 18 year later? And if so....same questions as above.

OP posts:
LilQueenie · 23/11/2018 22:37

Now that he is 18 i'm not sure you can. He may have to do so himself.

WishUponAStar88 · 23/11/2018 22:39

Children’s records are kept until they are 25. As an adult he has control over these records and so it would have to be him that requested a copy of the notes at the individual hospitals through their PALS team. There is usually a charge for this.

Walkingthroughawall · 23/11/2018 22:42

If your son is 18 and has capacity then you can not request his results/records (but he can if he wishes).

DameSquashalot · 23/11/2018 22:44

I requested a copy of my medical records after DD was born. Mine went back at least 20 years. It was mainly to get hold of my birth details, but there was lots of other stuff included too. I think everything will.bs on record related to his NHS number. We've moved recently, so I don't know what was in the records and not sure where the file is, but a record request might help you. I think I had to pay around £18. It may be on his file with the GP...

Clearthinking · 23/11/2018 22:45

Pals department or information governance team. Fill a form, they trace and send back.

DameSquashalot · 23/11/2018 22:45

I'm such a slow typer......

SofiaAmes · 23/11/2018 22:48

He's quite happy for me to continue to manage his medical stuff and has been signing authorizations right and left to let me do so for all his current medical interactions. In this case, I am just trying to find out how and where and then I would draft the letter and then he would sign it.

@WishUponAStar88 thanks for the info. It's good to know that they should exist somewhere and that the request goes through PALS.
The TSH test was apparently ordered by the Community Midwifery Team out of Ealing Hospital (which is NOT where DS was born) and done at Camelia Botnar Labs, but when I google that it shows up as being part of Great Ormond Street Hospital which was not our local hospital at the time, nor the hospital that he was born in nor the hospital of the Community Midwifery Team. Any idea of which hospital I should approach?

OP posts:
SofiaAmes · 23/11/2018 22:51

And his NHS number does not seem to be anywhere in his Red Book (we moved to the USA just before he turned 5 so I have nothing recent that would show the NHS number.

OP posts:
New posts on this thread. Refresh page
Swipe left for the next trending thread