I am becoming phobic about ds health

[noddyholder]

I am starting to become obsessed with thinking ds has kidney/heart problems etc like me.This has neevr been a problem before but since he has had tonsillitis this month I am watching him like a hawk checking how many times he pees asking him all kinds of silly questions and generally scrutinising him for rashes etc.He has some minor signs of weird health issues but is rarely ill and has only been to the gp twice in his life!I seem to link everyhting he does to something medical and I feel I am going insane.I don't want to put him through tests as dp thinks he's fine but I would hate to miss something feel like I am going mad tbh

It's only natural that you would worry about this.
Are there any non-invasive tests he could have at the GPs that could set your mind at rest?

Have you thought about some type of counselling for yourself NH? Your fears are totally understandable and perhaps you need someone to help you to enjoy his childhood by putting your fears in their place?

I am almost scared to have any tests.This morning I went into his bathroom and he had left the loo unflushed and I was freaking out as the urine looked a bit frothy I don't want to worry him as he calls me an old crock adn i like to keep his thoughts on my health 'light'iykwim.I think I may talk to my consultant about it.My kidney failure was caused by a condition which develops following a sore throat so I am extra jumpy atm.

Do you think these sort of negative thoughts are worse before your period?Mine is due any minute and I do feel more worried than usual

Did your kidney problems follow on from HSP? My dd has recently had/has HSP and I am biting my tongue so as not to keep asking - does your tummy hurt - are your hands swollen - do you legs ache etc. I'm hoping as time passes I will relax more, but am going to be v wary of a reoccurence following any cold / sore throat / bug

that sounds pretty natural tbh, I know I am similar with ds1, ds2 and no doubt dd1 when old enough. it's a fine line between relaxed parenting and not wanting to ignore things either. hope you keep finding that balance

What is hsp?My kidney problems followed strep throat.I think I am driving him mad atm so will try to chill.

oh NH, i do this too with my 3 dd's.

its terrible.

HSP (Henoch Schonlein Purpura) is a condition where your body attacks its own blood vessels, causing them to swell and leak, it can be triggered by step throat and causes a horrendous 'blood blister' type rash and kidney problems. My dd aged5 has had it for 3 months, rash getting better, kidneys still losing blood & protein, just got to wait and see if the kidneys get better or get worse / kidney failure. Its quite common to worry of course, particularly when you've experienced problems yourself.

No I didn't have that My immune system did attack my kidneys though and I had a transplant.(I have had 2 now)High dose steroids could have reversed it but the hospital lost the referral letter from my gp and I never had any follow up and so my kidneys failed.Is your ds on prenisolone?

No steroids yet - we're told to just wait and see - they say they'd prefer not to give steroids unless the kidney problems get more severe, but how will they / I know? Which is why I worry. Her last blood pressure check was down so we're being hopeful

that's horrendous about the letter getting lost, noddyholder, how awful. that kind of event is one of my personal fears with ds1.
hope your dd soon recovers, debbie, is she losing a lot of protein/blood?

Sorry got sidetracked, looking at holidays!
It is horrendous about missing letter, I like to think you're being looked after, but little mistakes can have big consequences! As noddyholder can vouch!
My dd isn't losing a lot - I don't think - blood sometimes visible in wee & poo, last hospital tests are showing 4 points of each don't know what that means - when I ask is that a lot they say 'significant but not to worry'. .