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Not just painful periods support group for anyone who may be affected by endometreosis

1 reply

Jellyjumpers · 15/10/2018 19:16

I have seen a lot of people on here talking about endometriosis or painful periods. I wondered if it would be helpful to share experiences with anyone diagnosed or not or who's daughters may be affected.

For anyone who does not know endometriosis is a condition in which the lining of the abound whoom grows in other places in the body. This usually affects pelvic organs eg ovaries bladder and bowel. However, endo has been found in other places eg lungs and brain. The endometriosis is afected by hormones and cab bleed, but as this blood has nowhere to go it causes pain, scarring, fertility problems or problems with organ functioning. The only reliable way to diagnose is with key hole surgery.

OP posts:
Jellyjumpers · 15/10/2018 19:24

My story is that in most of my adult life I have had stomach pains and diarrhea. I did not particularly notice painful periods but had ovarian cysts. I had been diagnosed with ibs specify but the gadget gastro did not think this matched pain that would rake me from sleep.

Late last year had a cyst removed and endo and adhetions on the bowel were removed.

Since then lots of my bowel symptoms improved. And a mirina is mostly stopping periods. However, I have bad pain on my left hand side and have twice been admitted to hospital scans have been clear. My gp thinks ibs but the hospital suggested endo or adhetions which they think is also causing sciatica type pain.

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