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Vitamin D help please

6 replies

vintagebella · 02/10/2018 22:20

Hi, my gp has advised me to supplement Vit D but I don't really know what I'm doing. I don't know how much I should supplement and whether I should take any other supplements with the Vit D. Can any of you more knowledgeable people help please? Blood tests for thyroid issues came back ok so gp tested parathyroid;

PTH - 6.9 (1.6-6.9)
Vit D - 52 (50-200)

Phosphate, calcium etc all ok, not raised as yet.
B12, serum folate, ferritin all low in range and have dropped substantially since I stopped supplementing 5 months ago.

GP wants me to supplement Vit D only for 3 months and then see what further blood tests show.

Thanks for any help!

OP posts:
AGHHHH · 04/10/2018 01:00

Your level isn't too bad, not optimal but not worryingly low. A standard 1000iu Vitamin D3 supplement should help.

Are you supplementing the other low vitamins?

SeaToSki · 04/10/2018 01:14

I take 3000 a day and that keeps my levels reasonable in the winter, I take less in the summer. I would also take a really good multi vit and mineral too. Make sure it has lots of magnesium and selenium. You may have to then take iron separately as it can inhibit uptake of other vits. Take the multivits and D in the morning with a glass of milk and then iron in the evening with a glass of OJ

vintagebella · 04/10/2018 07:49

Thank you both for your help.

AGHHH - No it hasn't reached rock bottom yet but it has dropped from 92 in April, I presume because I stopped supplementing.

SeaToSki - Thanks, I'm probably not going to supplement anything else just yet, trying to work out if I have other issues. I'll see where my levels are in January.

You'd think we could just eat a good diet and everything be hunky dory! Thanks again Flowers

OP posts:
Bettertobehealthy · 05/10/2018 14:43

Hi vintage

            Your parathyroid is right at the top end of normal.  That is a typical response to low vitamin d.  
             The mechanism is as follows...  Your blood calcium needs to be maintained in a tight range ,  i.e the normal range.   IF  your body is needs to absorb more calcium from your food , then  the Parathyroid,  PTH,  hormone increases , which is instructing the kidneys to manufacture more vitamin D hormone ( 1,25 didydroxyD3 ) , which then enables your intestines to absorb a greater percentage of the total calcium that you ingest.  IF you have low levels of the pre hormone i.e. 25hydroxyD3 -  which is the measured value of your vitamin D level,  i.e. 52,  then you might not be able to make enough hormone ( 1,25dihydroxyD3 ) . So your endocrine system increases the PTH hormone level in an attempt to raise your calcium absorption, in a feedback loop. One of the effects of higher PTH  could be to cause your reservoir of calcium , i.e. your bones, to donate calcium to your blood. In order to maintain your blood calcium in the normal range. A higher PTH,   CAUSED  by low  Vitamin D , is called  secondary hyperparathroidism.  It is not a problem with your parathyroids , it is simply a normal response to low vitamin D,   OR   insufficient calcium consumption.   Are you dairy free ?  Do you eat plenty of calcium containing food  i.e. greens etc. 

      At this time of year ,  your Vitamin D level will be around  maximum, from natural sources,  i.e. sunlight and food.   Sunlight does not contain UVB  over winter ,  that is mid Oct  to mid April , so our vitamin D levels drop over winter,  unless you supplement.  We cannot make vitamin D in our skin over winter. So we rely on food.  Vegetarian foods , have practically no vitamin D ,  it is a mammalian hormone ,   so there are small amounts in  meat and animal products. IF you are vegetarian ? ,  you may be absorbing hardly any by mouth. 

   It seems that you are not getting enough Vitamin D, for whatever reason, from natural sources. i.e. food and sunlight.  However, the fact that you dropped from 92 to 52  over summer  means that if unsupplemented, you will continue to drop over winter. 

The reasons that you don't have much vitamin D in your blood , could be,

   1. Inability to absorb from food . you may have intestinal problems, IBS, Crohn's, Coeliacs, Gall Bladder , bile problem etc etc 

   2.   Insufficient sunlight on skin  during the summer. bear in mind that you can only make vitamin D when sunlight contains  UVB  radiation ,  that is  between 11 am   and  3 pm , in the summer months.   Outside of those times , including all winter you cannot make vitamin D in your skin.  That is just the basic physics of sunlight. You do need to expose a reasonable amount of skin , not just face and hands. 
  1. Sunscreens. IF you apply factor 15 or more during the time that UVB is present , then the sunscreen absorbs the UVB , and prevents the skin absorbing that UVB , and stops Vitamin D manufacture. It is recommended that you leave sunscreens off for 20 mins
  1. You may simply not get enough , i.e you may avoid sunlight , not eat vit d containing food such as oily fish etc .
       Your body requires  about 70  IU of Vit D   per day , every day ,   per kilogram  of Vit D.   That is from all sources,   food ,  sunlight   and supplement.   

                  Most people ,   on average ,  will raise their blood level by  25   nmol/L    for every   1000  IU  of daily supplement.    IF  you stop supplementation ,  then you blood level will drop,    as you have found. 
  Don't stop supplementation after 3 months.   Your levels will fall again.   When your doctor does the test, perhaps  convince him to do a calcium test again ,   just to check things are ok.     There is just a slight possibility that  your parathyroid level is high not because of Low vitamin D.   I would expect your parathyrroid to come down to middle of the range or less , once you have a better level of Vit D.   IF  it doesn't then that should be explored.  Any calcium measurement above normal should be explored.  It is very unlikely though !
                 
                From your description above ,  you are likely to need around  3000  to 5000  IU  per day,  ongoing.  To maintain a level , preferably above  100. 

                IF  you do have any kind of absorptive issues , such as those gut problems mentioned above,   you might consider an oral Vitamin D spray , which will be absorbed directly into the blood stream , and avoid the digestive system.  

               I hope this long message is helpful,  

                  Best of Luck , 

If you need anymore info ….get back to me , or have a look at some of my other post here on Mumsnet , where I have explained a bit more about Vitamin D.

                 BTBH
Toofle · 06/10/2018 22:55

So how do we square all this with the latest combined result of many Vit D studies that show no significant benefit in taking it , for the majority of populations in various countries? I dunno.

vintagebella · 07/10/2018 08:43

@BetterToBeHealthy - thanks for that very comprehensive info. I shall look into other posts of yours. My health hasn't been good for a while and it's been difficult pinning down anything in particular as being a possible cause. My thyroid checks have all come back ok despite a neck swelling so I'm hoping Vit D will help as clearly my parathyroid is struggling.

@Toofle - The latest reports have stated that Vit D has no significant benefit for bone health. That doesn't mean we don't need it! Like cholesterol (which all health professionals insist is 'bad') Vit D is vital for our body to function properly as a whole - as mine is barely within the UK range then I'll try supplementing.

I'll update when I have new results in case it helps anyone else

Thanks again Flowers

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