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I need a hand hold/talk down (gyno/cervical issues)

13 replies

pumpastrotter · 25/09/2018 12:46

Posted recently about possibly having fibroids after several months of constant bleeding. I had a doctors appointment 2 weeks ago, no physical inspection but was booked for a scan and blood tests. So far I've had no news on the scan but had bloods today - chatting to the phlebotomist she was looking through my notes and asked about the scan, she was shocked I have not had it yet and said it was urgent and to speak with reception to get an emergency appointment.

I was given Utovlan at my docs appointment which took a few days to work, stopped last weekend and the bleeding immediately started again with more flooding and clotting and I'm having quite a lot of discomfort around my pelvis, up my back and my tummy is very tender. Over the past 3 months I've been bleeding almost daily, ranging from flooding to discoloured discharge - so naturally the worst conclusion has been creeping through my mind. I'm trying to focus on the more likely cases (hypothyroidism which runs in my family, fibroids, hormone imbalance etc...)

Right now I'm really struggling, especially after speaking to the phleb this morning and her reaction to me not having a scan yet (I wasn't aware it was even an urgent scan until she said). Last month one of my good friends at 31 had a full hysterectomy after a recent diagnosis of cervical cancer. Last week another friend at 33 was diagnosed with womb cancer - this friend had been having similar issues to myself for the same amount of time and we've been going through our problems together - so of course, this is way at the forefront of my mind and I've been on and off sobbing all morning at work (and the past few nights working myself up).

Rationale is currently not functioning! We have no history of cancer in my family, I've had children, clear smear 2 years ago, and live a generally healthy life... the 'obvious' causes are not there - yet I am terrified and my mind is racing.

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Alwaysneedgin · 25/09/2018 15:47

Didn't want to read and run, I'm in a similar position though without the blood tests. Have you spoken to your doctor about scan?

Did phlebotomist say why it was urgent? Has doctor implied anything worrying might be going on? I've had an urgent referral but because I'm bleeding as far as I know

pumpastrotter · 25/09/2018 16:25

Thank you, @Alwaysneedgin. I spoke to a doctor a few days after my initial appointment who had no idea why he was ringing me (useful) but once he decided to read my notes, he was checking in and said I would get a letter re. the scan, he advised if it got worse to go straight to A&E. I've just spoken to a receptionist and she said that the scan request hadn't actually been sent off despite marked urgent on the day of my appointment (again, useful) but it had been sent this morning to radiology after I spoke to them, so more waiting.

The doctor didn't have much to say except it was very unusual and my blood pressure was worryingly low at the appointment, he casually mentioned fibroids and hormones... aside from that to wait for my appointment dates. He didn't even mention the scan being urgent, the phlebotomist read that to me from the notes. In all honestly, feeling a bit let down, the surgery has a mix of doctors who are either really good or shockingly dismissive, I thought this one was quite helpful but in hindsight a bit useless, the phleb seemed more concerned and really stressed to get the receptionist to book my scan for asap.

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pumpastrotter · 25/09/2018 16:53

Just to add, I know I'm being very over emotional atm and have already apologised to DH for being a potentially over-reactive mess. I feel like my body isn't my own right now, my friend's diagnosis's are making me hyper-paranoid about my own health and naturally I'm thinking of the worst possibility, finding out the scan should have been urgent and done already has really thrown me.

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Alwaysneedgin · 26/09/2018 06:11

It sounds to me like they want it done urgently because it needs sorting. Not because they're overly worried x

pumpastrotter · 26/09/2018 12:51

Perhaps - i’d just like some answers at this point instead of driving myself crazy.

Hope your results are all well

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stellabird · 26/09/2018 13:02

I had exactly the same symptoms and it was multiple fibroids. The constant bleeding is when the fibroids ( which are like little balloons full of blood) burst. I ended up having to be hospitalised, had a transfusion, then a d+c and went on hormone therapy which I only ever stopped when I wanted to get pregnant. After my second child , the fibroids came back and I had an elective hysterectomy at 35.

I'd say that if you don't get some medical action shortly, go along to the A+E and go that way. Fibroids won't go away - they are not life threatening but you do need treatment a sap. Good luck !

pumpastrotter · 27/09/2018 09:49

Thank you, @stellabird! This is where my logical thoughts are leaning, it's reassuring to hear that you had similar symptoms. I'm sorry you had such a rough time with them.
I remember my mother having a hysterectomy in her early 40s but I have no idea why. I've felt like such a hypochondriac the past few days, I think my second friend's diagnosis has sent me into panic mode.

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Alwaysneedgin · 30/09/2018 09:07

Is there anyone you can ask about your mum's hysterectomy? I was feeling very calm earlier in the week but now I'm worrying myself.

How are you getting on?

Ignoramusgiganticus · 30/09/2018 09:11

Even if it is worst case scenario, things are more than likely going to be fine. I've had cervical cancer and all is good now.
The waiting is the worst.

pumpastrotter · 01/10/2018 12:39

@Alwaysneedgin sister possibly knows but I've not got around to message her. I've had a slightly better weekend, the bleeding has stopped and me and OH dtd for the first time in a few weeks - no bleeding after which has really put me at ease re. cervix concerns - still having bad cramping though and my back is completely out (no thanks to dtd, unfortunatelyGrin) almost like a trapped nerve, but I've been putting it down to stress and tense muscles. Scan is this week so hopefully will get some answers. How about yourself?

Thank you, @Ignoramusgiganticus - glad to hear you're OK now! The initial panic has somewhat passed and I can think logically again. I've seen what my friend (who had her hysterectomy last month) has been going through, she's had the all clear now but there are so many changes in her life and it's scary to consider.

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pumpastrotter · 19/10/2018 12:20

Quick update - scan and bloods came back, both absolutely fine. So basically it's a complete anomaly and I feel like a massive hypochondriac. The internal scan was unpleasant, it was really quite painful around my pelvis and I'm still having cramps but still no bleeding since the last post. The back pain/trapped nerve has escalated to full sciatica though which has been an utter delight the past week as it's been so bad I haven't been able to drive.
In one way I'm glad there's nothing been found, but I'm completely stumped and still don't have any answers Confused. I hope you other ladies who were going through similar have had equally good news!

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Alwaysneedgin · 22/10/2018 08:57

I think they say a lot of random bleeding ends up unexplained. Glad everything came back ok. I have my hysteroscopy tomorrow and I'm bricking it. Such a wuss! 😂

pumpastrotter · 22/10/2018 09:41

Yay for the female body, eh. Good luck, @Alwaysneedgin!

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