High FSH levels in teenage daughter

[Leggott]

Not sure if anyone can give me any information about this but my daughter who has Type 1 Diabetes and 15 1/2 has not started her periods. Test have been done which show high FSH levels. Adrenal, ovarian and thyroid all ok and turners syndrome also ruled out. Scan of ovaries and uterus all normal.
The hospital are going to run a urine test (not sure what that’s to check) but I just wondered if anyone has experienced the same. The hospital haven’t given me very much info, just that they believe it’s autoimmune even though no ovarian antibodies.
Any info would be appreciated.

FSH levels surely show that periods are on their way, the hormone stimulates production of follicles.

She's probably just a late starter.

I didn't start my periods until I was almost 16. I don't have any health issues. I look back and I'm very grateful as periods suck!! Perhaps she is just a late bloomer?

Thank you.
Her FSH levels are incredibly high (levels that you would expect in the menopause) so there is a reason they are that high.

High fsh levels - in general - suggest low ovarian reserve( ie low egg numbers).

However I don’t know whether this implies something different in a teenager? I would push for answers on this one.

I am interested in this area as I discovered high FSH levels at a relatively young age (but a lot older than your daughter). In my case it was premature menopause. It must be reassuring that your daughter appears to have normal ovaries and presumably normal ovarian reserve.

I have a friend who had a very rare condition which meant that she never went through puberty as her body did not react to the hormones. She was later able to start a cycle though with specific drugs when she wanted to conceive. It could be something similar, although I am not sure of the name of the condition. Sorry that is probably not that helpful! If she has normal ovaries there is so much they can do.

Found this:-

"In girls, FSH and LH prompt the ovaries to begin producing the hormone oestrogen, which causes a girl's body to mature and prepares her for menstruation."

FSH is high just before menarche, I hope that is what it is for your daughter.

To reassure, maybe your GP would organise pituitary tests, especially as she is diabetic.

Thank you.
Yes, that’s exactly what’s happening. The FSH is to trigger the egg release but it’s not happening. I’m waiting to get a urine sample done at the hospital and then they should be able to advise me further. It’s just the waiting and not knowing that is hard. Thank you

Hi @leggott, just wondering how things are with your daughter? I'm 29 with very high FSH (postmenopausal levels) with regular periods throughout my life, though they did stop for a year shortly after puberty. X