Neurology want to discharge me after minimal tests. What should I do now?

[LittleLionMansMummy]

Started off a year ago having some symptoms that became bothersome enough to go to the gp. He referred me and mentioned ruling out ms. Was sent for an mri and eventually got an appointment with the consultant. She checked my reflexes, asked me about my symptoms, said my mri was clear apart from some minor stuff on my spinal cervix which you'd expect for my age (39) and she could categorically rule out ms. She implied that it was psychosomatic, but sent me for nerve conduction tests on my left arm only in case it was carpal tunnel (the left arm pins and needles was the least worrying aspect for me tbh).

Returned from hol on Friday to find a letter asking me what I want to do next, implying that since she's ruled out ms and carpal tunnel there's nothing apparently wrong with me. The thing is, I didn't go well prepared with a list of symptoms and there were some I didn't really go into. I don't want to give her any ammunition that I'm a hyperchondriac and dismiss me again. Likewise, it could well be that neurology is not the place for me, but I can't face starting from square one again and have no idea which department I could be referred to (could be autoimmune, could be spine etc)

My balance is shot, my spatial awareness is shit and I'm forever knocking into things, I feel like I'm leaning to one side and therefore my gait is all wrong and I'm experiencing muscular pain on my right side (hip, calf and shoulder).

I'm still experiencing symptoms, but have no idea where to go next as it seems like she's confident it's not neurological and she's the one that's done years of training and is the expert yet has asked me what I want to do next. I'm not the expert, but she's only specialises in neurology and can't advise of what else might be wrong.

Does anyone have any advice please?

Balance and knocking things over made me wonder if it is your ears? Have you had them checked?

Neurological disorders can manifest for many different reasons and stress, lack of sleep etc... Can't be undermined. It does not mean that the symptoms are any less real or disabilitating just that the cause of them start in the brain.

I was referred to a neurologist 12 years for symptoms that were very real and pointing to ms so much that two gp friends had told me to be prepared for a diagnosis. During that time I had sudden reduction in sight in one eye and one foot going very hot whilst the other was freezing cold confirmed by my child. I had pins and needles, balance problems and more. Tests came back all normal and I was discharged. It had been going on and off for a year. At this point I had enough of it all and decided to accept I didn't have ms. Within weeks all my symptoms disappeared and after more time I realised that I'd been under much stress. I didn't realise at the time because it was contained but it is because I was keeping it internally making it seem under control that it was messing me inside.

I thought I'd learned from that experience but 10 years later it all happened again but worse. Saw ENT, cardiologist had MRI and every blood test possible and all came back normal. There are a number of factors that give me physical symptoms and stress is one of them but almost all are things I could improve changing my lifestyle.

Medical experts are often dismissive of neurological conditions because they are often right. They see people like me very often.

Saying that if balance is a main problem have they considered an issue with your ears?

My neurologist referred me on to another neurologist he knew in London as he was baffled as to what I had. I would just go back to your gp though and tell them you're not happy.