What does this sound like to you? Re numbness/ weird body stuff going on

[Kenworthington]

I should say I am prob a bit of a health anxiety person but this is a real thing with real symptoms. I am trying to not talk to anyone in rl about it though I have voiced some concerns to share.
I have already been to the gp , to be honest I’m quite worried but I’m trying not to voice it irl.
Last year I noticed my heels were numb. No pain. Just numb. Went to gp, gp said oh that’s weird. Had a Doppler thing done on legs to check circulation. Came back fine. Didn’t Persue it.
Fast forward to May this year- heels remain numb, now I also have numb little toes. This has been joined by tingling/ numbness in fingertips, also running down the side of little fingers onto side of hand. And a faint tingling of lips is ow happpening too. It’s All the time. It doesn’t stop and start. I can feel. It’s not completely completely numb. More altered sensation, like when you’ve been anaesthetised. And are just starting to get the feeling back iyswim. No other real symptoms as such although I would say that I have some brain fog/confusion that comes and goes, a bit like the start of a migraine. Very occasionally I get this thing when I’m walking where my legs sort of ‘collapse’. I am often extremely fatigued by mid afternoon/evening.
Went to see a different doctor. He is sending me to see. Neurologist. No idea how long wait will be or what they will be looking for. I have blood being taken on monday. I think this maybe a long drawn out thing with no real outcome. I am really scared it’s gling to be a degenerative condition. Simply because it’s already getting worse. And the doctors are puzzled by it.
I am 42, a bit overweight, otherwise healthy. Any ideas???

I get pain with fibromyalgia, but the first symptoms were "fibro fog" and overwhelming fatigue.

I had strange sensations in my feet and fingers too - somewhere between numbness and tingling. I also got it around my mouth. The afternoon tiredness thing was dreadful - I would fall asleep in my car at the traffic lights. Thankfully my doctor diagnosed hypothyroidism and put me on thyroxine. It took about a year for the numbness to completely disappear (other symptoms improved much more quickly) but I'm fine now.

obviously i cant say that it isnt MS, but its helpful to be aware of other more common, less serious explanations.

en.m.wikipedia.org/wiki/Functional_neurological_symptom_disorder

fndhope.org/fnd-guide/symptoms/

^^that helped me alot when i was having neurological symptoms.

Oh! I forgot to mention in my op, another potential symptom that I mentioned to the doctor- sudden onset of blurry vision- again from about May. I DO wear glasses, I’m short sighted. I had some new specs in about march. After a few weeks of blurriest I made an optician appt for an eye health and vision test. All came back clear. No reason they could see for blurriness. It remains blurry (it has only been one eye). So may or may not be connected? I don’t know

I get tingling at times but only if I haven't been eating marmite daily. B12 deficiency is worth checking

I also get blurry vision, especially in the evening when I am tired.

I am on Gabapentin to keep the horrid tinglings, burning and crawling flesh at bay. It works well although I missed a dose the other day and I am getting breakthrough symptoms, gggrrrrrrr

Hey I thought I’d pop back to say I’ve had my bloods done inc checking b12 and floated and all is completely normal. Got a second appt with a different doctor next Tuesday and she’s going to refer me to neurology. Will let you know how I get on!

i’d suggest getting a copy of your blood results OP. i’ve been told things are “normal” when they haven’t been. for example a range of 14-200 might be normal for something, and your results could be 15, thats very low!

hope all goes well with neurology though and you get some answers

Was about to say the same thing.

Re B12 - normal can be anywhere between 250 and 900. I know at the lower end I will have symptoms but doctors are unwilling to treat. I treat it myself and feel much better at the top end. Same with thyroid.

exactly the same symptoms, eventually diagnosed as fibromyalgia with a detour of "hyper sensitive nerves" from a neurologist , B12 is mid range, but my vit D was low (but not low enough for the NHS to treat, so I'm self supplementing that, spray works so much better than gelcaps).

I'm not totally convinced there's not something else going on (inflammatory arthritis maybe) as fibro does seem more like a "dustbin diagnosis" of a collection of symptoms, but hey ho. I'm taking pregablin and amitriptyline at night, both of which have slowed me down mentally, but are helping me sleep. Other thing I take is magnesium malate, I have really restless legs if I miss a dose.

Any update kenworthington?

Hi @Kenworthington I was just wondering if you ever got to the bottom of this?