Cancer support thread 63 for a handhold or advice and anything in between

[purpleunicorns]

Continuation of the lovely Leslie's thread here as it was nearly full

If you're worried about symptoms, waiting for test results or just need a safe place to vent then pull up a seat, we're a friendly bunch and we don't bite too much

There's quite a variety of cancers on this thread so hopefully one of us will have some advice and hopefully you don't need to stay for long.

I'll start with my story:
Diagnosed with stage 2b cervical cancer in October 2017, 25 lots of radiotherapy, 4 internal radiotherapy and 5 lots of chemo. Was told last week that it's spread and is incurable, palliative chemo starts on 16th July

Wildboar sorry I have no idea about any of that. Is there a specialist nurse you can speak to?

MumofDiamonds it's usually a couple of weeks for biopsy results. Do you know how you'll get the results? (Letter/GP/consultant?) I'd chase up next week if you haven't heard anything by say Wednesday.

It's just me filling the thread up with my erratic new posting style. Every so often it randomly reloads the page so I don't want to lose what I typed. Sorry everyone especially as it's not even anything exciting.

I'm enjoying this cooler weather. Very refreshing :)

Planned keep nagging every doctor and nurse you see, hopefully you'll get seen soon. Are they expecting you to stay in until the 20th just waiting for a scan?

Hello. I hope you don’t mind me posting as I don’t have cancer but my husband has stage 4 cancer, a very rare one. After 10 months of hormone treatment his cancer is showing some more activity and his wonderful oncologist is ready to move him onto chemo at the start of September. It will be carboplatin and docetaxol, once every 3 weeks for 6 courses. We have known for a long time this time would come but wonder if any of you lovely ladies can give us some advice on what to expect including side effects etc and how ill he is likely to be.

Obviously the oncologist has gone through it all with us but nothing beats hearing it from people who have been through it. He’s a private patient and although I know the chemo treatment is the same I did hear that they do offer different and sometimes more effective anti sickness meds etc than NHS.

I've booked on a Penny Brohn course. The diet plan sounds terrifying - basically the complete opposite of my low fibre diet. I think I'll take plenty of snacks! :) but lots of people have recommended it and it will be a nice little break in a peaceful place. They're based in Bristol but they do courses in other areas too, I think.

Yvest sorry I haven't had that regime so hopefully someone else can advise. There's also a thread for partners/people supporting loved ones with cancer, which lovely TQ linked to a bit further up the thread. They might be able to help too :) or if you go on the Macmillan site you can search by drug/regime, which is quite handy. Individual reactions vary so wildly that it's really hard to know how ill you'll be until you've started. Hopefully the side effects will be manageable for him

Having just dropped my laptop off the back of the sofa (thankfully it seems to have survived!) I am going to start the new thread now before I have any more technological disasters and lose all my carefully curated links. They're actually not all that exciting. I just don't really have a life! So err stand by to be underwhelmed...

Drum roll please... CANCER SUPPORT THREAD 64 now up and running and ready for someone that isn't me to post on it

Feel free to migrate over as any new posts on this thread might get missed.

I hope nobody is offended by the title. I just couldn't resist

can't believe your brother said that noodles. No clangers yet surprisingly! And I managed to get a lovely nap while family played with kids .
See everyone on the new thread.

Hello everyone. Had rather a shock today. I went to my local hospital to talk to a Consultant about the various symptoms I have been experiencing. An immune disorder seems to be the path taken and it was thought I had Sjogrens.

However, the Consultant I saw today says she is determined to find out what was going on and she thinks I have Non-Hodgkins lymphoma.

I am was ok when I left the hospital but am feeling a bit shaky now! Apologies if I have run on a bit. Wondered if anyone on here has been told that they may have NHL and then fund out that it was something less sinister? I am having bloods done tomorrow and a body scan shortly. Thank you everyone for reading.
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Hi percheron

I’m a haematology patient, but I have leukaemia, not lymphoma, do I’m not sure I can be much help about the diagnostic pathway for you and if there are other conditions it might yet be,

The support thread has moved on to a part 64, which you will find here There are a couple of posters with lymphoma on it,

Welcome to the club no/one would choose to join. Really hope you’re not here for long,

Bless you, iVampire. will check for part 64.

Hi, my Mum died of cancer of the oesophagus. From the day of diagnosis to her death, it was only 5 weeks. It was a devastating shock and I was with her most of the time. She had been complaining of 'allergies to food' for a few years but despite the whole family asking her to see a doctor, she wouldn't. She was walking in parks and active until the day she finally went to see a a doctor as she could not eat (!) After that everything went very quickly. This was in May. I still have horrid nightmares and am now imagining I have the illness as well ( I know silly of me). And I am so sad and angry at everyone. Not good.

Hi Linda. Sorry about your Mum. You're in the wrong thread though. Everyone here has cancer. You might be better off looking for one on bereavement instead. Good luck.

Great thanks ladies. I'm off to boots later for some of that gel and it's pretty cold here today so scarves can be worn that cover mouth etc if necessary.
@Namechangeforthiscancershit what type of puppy? I was looking at some little afghan hounds at the weekend but DH and my cats would go mad I think! Can't train the cats to sleep on me, they bring me nice presents though in the early hours. Couldn't make out what it was at 3.30am today but it required a lot of crunching!

I am so sorry. I wish you all all the very best and know you are all loved!

Well this thread changing thing has confused me! I couldn’t get the old thread to work! Am I being thick?
Aghhh an excuse to share a picture of my puppy! Well this is brilliant.

He is 75% cavalier and 25% poodle (I know MN hates designer mongrels but he’s perfect for me). 17 weeks and he is mostly adorable but last night

5 dogs is my dream! What are they?

Linda that is awful. I would be angry too. I hope you can find some support on the bereavement threads

Here is the proper thread, this one is the old one NEW THREAD