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Chronic UTIs? Get tested for Ureaplasma and Mycoplasma! It saved my sanity.

2 replies

Komorebi · 23/05/2018 14:12

Hopefully my story will help those who can relate to the following:

I spent four long years plagued by chronic UTIs, trush and BV. With no end, or help in sight.

Always feeling the constant need to pee every five minutes, but never feeling completely "emptied" either. Being in agony afterwards and starting to dread the next pee. Just as much as dreading the painful aftermath of sex, which took a toll on my sex life. Random pelvic pain included.

Many (not always competent) GPs and gynecologists. Endless appointments. Hundred of STI tests, smears, pee dips. Always the same answer: "Inconclusive test results, but we can treat the symptoms."

After every appointment I left with a big bag of medications. Antibiotics, creams and pessaries, leaflets about improving my personal hygiene and self-help groups for chronic pain patients. There was a random trip to A&E for an allergic shock. An MRI scan and plenty of ultra sounds. I was even offered explorative surgery by a urologist.

I can't even begin to imagine how much this must've cost the NHS over the course of four years...

One nurse actually told me that it's all in my head, and not to come back. I felt like a burden. Like a crazy patient with an imaginary problem.

Only by chance a random lady overheard my complaints to a friend one day and told me to look up "Ureaplasma and Mycoplasma".

One test and two weeks of treatment later it was all gone. Like a bad dream. And hasn't returned since. I finally feel normal again. Smile

Despite having a great article about it affecting thousands of women the NHS doesn't test for it yet. I went private for testing as I had nothing to loose. And I'm glad I did.

It might not be the answer to everyone who's suffering from these symptoms, but I'm glad I found about the link between UTIs and Ureaplasma/ Mycoplasma.

My honest sympathies to everyone who still is suffering from it. Flowers Not many could relate to the impact it had on my mental health. I can only hope that awareness amongst doctors will improve soon! Hope this helps someone :)

OP posts:
doesitevergetbetter · 15/01/2021 16:56

Hey @Komorebi I know this is a very very old thread but if you're still around, I was wondering if you ordered your test online and did it yourself or did you go somewhere to have it done? I'm having similar symptoms

MiamiBeach104 · 19/06/2021 11:39

@doesitevergetbetter I was diagnosed with Ureaplasma privately while doing check up for bleeding between periods. My partner needs tested too but NHS won't do it.

It's better to have it sorted if you are looking to become pregnant

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