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Blood results help/suggestions please

7 replies

InSpaceNooneCanHearYouScream · 22/05/2018 16:15

I see such an enormous amount of knowledgeable advice given from you lovely people that I wonder if you can help me?
I'm a 45 yr old female with typical boringly long history of nagging health complaints- anxiety (well controlled on fluoxetine), extreme tiredness and lethargy, frequent headaches,skin complaints including very dry skin and funny bumpy rashes on elbows and knees that come and go,and a twenty year history of irritable bowel type symptoms.

I've had blood tests in the past which just showed slight anaemia.

I went back to the GP recently asked to be tested for coeliac-and she also ran a full panel-liver and kidney function came back dead normal but others are as follows;

TSH: 2.8 mu/L. 0.27 - 4.20mu/L
Calcium: 2.18 mmol/L. 2.15 - 2.55mmol/L
Vit D: 31 - abnormal-gp recommends supplements
Haemoglobin estimation: 109g/l. 120-150 g/l
Ferritin: 5 ug/l. 13 - 150ug/l
B12: 228 pg/mL. 180-914pg/l
Serum folate: 4.4 ng/ml. 3.10-20.00ng/ml
ESR: 31 mm/h. 0-12mm/h
Coeliac screen- normal

Obviously from this I'm anaemic and ferritin is very low, and because my ESR is also high my gp referred me to gastroenterologist for bowel investigations.Gastro was pretty dismissive and thinks I just have IBS, he basically shrugged when I mentioned my ferritin level is 5. He is going to do a colonoscopy just to be sure though. In his clinic letter he said the anaemia doesn't warrant further investigation as I still have periods. Even though they are normal and not heavy. Hmm

The gp will discuss iron supplements etc once I have had the colonoscopy. I did ask for more detailed thyroid tests: free t3 and 4 and thyroid antibodies but she refused, saying my thyroid result was dead normal and my symptoms were probably just caused by anaemia, which goes against a lot of the advice I have seen, but I don't feel I can argue with my doctor, even though a lot of my values are at the bottom end, like B12, but she won't do further testing as they are 'normal'.

Any thoughts? I really don't want to feel this grotty for the next twenty years!

OP posts:
9amTrain · 22/05/2018 16:57

I'm no expert, and can't comment on everything. This is what I've picked up from here and other helpful forums...

Your vitamin D, B12, ferritin and folate are all low/borderline. Don't just take a multivitamin as they don't contain high enough amounts. Maybe take Vitamin D together with e.g. Feroglobin liquid combined iron, B12 and folate. Hasn't your GP prescribed something for the low ferritin at least?

Your TSH is in range but sub-optimal. TSH alone is not conclusive. You really need FT3, FT4, antibodies tested. You can get a private full thyroid panel for £60. Or ask another NHS GP.

Vitamin D, B12, ferritin and folate are the four essentials for thyroid function, incidentally.

Regarding the coeliac screen, were you eating gluten regularly for 6 weeks before the test? Otherwise it can be negative (and still likely would be if you just have gluten sensitivity as opposed to coeliac disease).

Maybe wait for the colonoscopy and then go back, or get a second opinion.

Your healthcare professionals sound useless.

InSpaceNooneCanHearYouScream · 22/05/2018 17:10

Thankyou 9am. No she didn't want me to supplement till after the colonoscopy, so that's several more weeks of feeling utterly shit then Angry.

OP posts:
InSpaceNooneCanHearYouScream · 22/05/2018 17:13

Yes I was eating gluten, although even the coeliac website says if the result comes back normal you may still need referring on if you have clinical signs, or something, but that would mean another argument with the GP!

OP posts:
9amTrain · 22/05/2018 17:15

I would try and speak to another GP as you do have a lot of flagged results, it's not as though you have one debatable result that wouldn't cause symptoms!

If I were you I'd at least start taking supplements just to get ahead of things.

I hate the healthcare in this country sometimes. I'm fighting myself. :(

Asdf12345 · 22/05/2018 17:44

Remember munching away on iron supplements before your colonoscopy will leave a black film on the inside of your bowel making it much harder to spot anything...

InSpaceNooneCanHearYouScream · 22/05/2018 17:54

Yes, asdf that's why I'm not taking anything yet

OP posts:
InSpaceNooneCanHearYouScream · 23/05/2018 15:42

Just to add to this, I now have a printout of my coeliac screen test:

Tissue Transglutaminase IgA 0.8
Tissue Transglutaminase IgG 0.9 u/ml

Reference ranges: 10u/ml- Positive

So by this range my coeliac result is very negative. But my levels seem VERY low- does anyone know if that might be relevant at all?

OP posts:
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