plagiocephaly

[Petall]

Does anyone have a baby with plgiocephaly? My gorgeous 5 month old boy has just been diagnosed and I would really appreciate any advice thoughts on this.

have you looked here petall?

plagiocephaply support group and site

hope this helps

Thank-you, yes I have looked , but as it's an American site I was wondering what happens here. I keep being told it'll sort itself out as he becomes more upright, but I don't want to assume this and find in a couple of years I could have helped a bit more.
The American site suggest seeing therapists and the use of helmets, but I've not been offered this or know anyone who has done this.
Has anyone been there done that and got the t-shirt?

they do use helmets in this country aswell. i dont know that much about it. My daughter has microcephaly which is totally different but i have often read about lagiocephaly because of the name similarity! Have you looked at yahoo groups to see if there is any support there?

I know a friend whose dd wore a helmet and it did come right by age 4...
just rung her she said try this site here
craniofacial support
and also CAF contact a family offer support through linking you up to other parents with similar diagnoses.
I found them fabulous when my dd was diagnosed with a rare genetic syndrome
try CAF here
Hope this helps, I don't recall it been mentioned here, but alomst always someone comes good with some info for what seem to be rare conditions
Big hugs, hope everything is ok

Contact a Family

Thank you so much Fio2 and Piffleoffaqus, will be busy reading for the rest of the night(provided the children stay asleep!)