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Help!! The period of doom is taking over my life!

13 replies

Pixieandpud · 15/05/2018 22:37

Please help. I’ve been diagnosed with dysfunctional uterine bleeding and the bleeding is a continuous tidal wave. At best i’m managing about 2 hours between changing super plus tampon and night time Sani combo. At worst I am sat on the toilet for 30minutes as my tamponis saturated as soon as it is inserted (sorry for being so graphic), waiting for the flow to ebb. I’ve anointed furniture, clothes etc.

Please can you advise on the best period pants, and share your experiences of menstrual cups? I remember reading about Diary Dolls but struggling to find any in stock. Any must have products?? Anyone had endometrial ablation and what were your experiences with that? Feeling pretty low with it all at the moment and fed up of organising g my life around toilet access.

Thanks ladies (and sorry again for the detail and the rant)

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Akire · 15/05/2018 22:39

Oh sounds awful I’m sorry :( I had very heavy periods in past and wore Tena pants I know popular after childbirth. They cover much more area than pad and can hold in floods or if you change position. Especially at night when you dareto lay on your side or front.

Pixieandpud · 15/05/2018 22:42

Not tried those before. Do you pop a Sani in those and they literally just mop up overflow? Are they disposable or reusable? Thanks for the sympathy! Much appreciated x

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Twotabbycats · 15/05/2018 23:00

Try Thinx knickers, they are online. Expensive though. You can wear with a pad or tampon (or mooncup?) to catch leaks, or alone on light days (what is this phenomenon I hear you say). They have good reviews.

Endo sufferer here so I remember the carnage! Now on long term GnRH drugs that have stopped my periods. Bliss!

Pixieandpud · 15/05/2018 23:08

@twotabbycats - will look them up. Norethisterone worked for me but the side effects were awful and I fear my marriage may have ended if I’d continued on it. Just started cerazette - worked great for first 10 days but bleeding started again a week ago. I’m trying not to get too disheartened as early days and I preferable avoidxsbkatikn if I could!

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Pixieandpud · 15/05/2018 23:08

Avoid ablation even!

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WhatsGoingOnEh · 16/05/2018 00:54

Lilets Ultra "for extremely heavy flow" are great, much more absorbent than super-plus. Orange box. Get them from Amazon. They're saving my life at the moment.

Pixieandpud · 16/05/2018 07:42

@WhatsGoingOnEh another friend recommended them to me yesterday too. I didn’t think to order off amazon (they don’t have them in local shops). Thank goodness for Prime. I’ll give them a shot. I found the old school nappy type sanis better than the slim always one too.

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Akire · 16/05/2018 08:26

Tena pads are like a huge san pro as designed for Urine so will
Absorb a lot. But much longer wider than Night time pads so no soaking through sheets I found even when flood it contains it not just hit pad and run straight down the back of you are not sitting perfectly still. . Not reasuable no but you can buy adult incontience products that you can.

AttilaTheMeerkat · 16/05/2018 10:32

Have you ever seen a gynae about this problem?. Who have you seen to date, just the GP?. The cause of this excessive bleeding needs to be determined properly as well as treating the symptoms.

It is not something that you should at all put up with because it can and does impact on the quality of your day to day living.

Pixieandpud · 16/05/2018 23:20

@AtillaTheMeerkat i’m Under gynae, lots of scans, no cause found hence the diagnosis of dysfunctional uterine bleeding. Tried mirena - now removed as no better. Norethisterone worked but REALLY bad side effects. Now on cerazette. Next option will be ablation. I was hoping to avoid that but had bloods checked today and Hb dropped from 12 to 7 in 3 months. Eek. I think i’m just going to have to go for it as bleeding is so debilitating and really affecting my quality of life now. Thanks for your concern.

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Pixieandpud · 16/05/2018 23:34

@Akire - thanks! Ordered some. Looking forward to less disrupted sleep already!

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Catstar123 · 16/05/2018 23:42

My DM had the ablation after suffering such heavy periods she became anaemia and would regularly faint. She took it to try and avoid hysterectomy - only other option left. She says it changed her life. Day case she had a bit of bleeding and then after that very light periods . Her own regret is she held off from doing it sooner.

Akire · 17/05/2018 20:02

Hope they work it’s great not to keep perfectly still at night case you flood!

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