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Original poster

Endo.....can anyone help

28 replies

MissReginaPhilange · 12/05/2018 06:22

Hey all. Long story as I've been referred to an emergency gynae on Wednesday for potential cancer/ endo.
Can anyone share endo symptoms with me and what sort of tests it took to diagnose and what the pain is like. I've been in agony for 2 months straight daily and have now got morphine tramadol coedine and basically every pain relief imaginable to try and shift the pain. Experience would be great

OP posts:
Original poster
MissReginaPhilange · 15/05/2018 18:16

@liande just got this thankyou very much for your response. Sounds absolutley horrific what you've been through. I've heard having kids can alleviate symptoms, glad that since you've had your kids it has got slightly better.
It's such a horrific disease it makes me wonder why drs don't seen to take it seriously. I've given birth 3 times without pain relief and I can safely say the pain I've been in for about 2 months straight is much worse. It's had me in tears unable to move can even feel it through morphine Sad
Here's hoping they can suggest ways to move forward tomorrow as I am honestly at my wits end with it all. I feel for anyone who has to live with this illness as if that's what I have I can safely say I wouldn't wish it on my worst enemy

OP posts:
Reaa · 07/11/2018 21:25

Not sure if you are still around OP but how are you doing now?

torgirl · 22/02/2023 21:02

TwittleBee · 13/05/2018 07:10

Hey there OP, I'm currently being investigated for similar symptoms:
Frequent (but not painful) urination
Bloated constantly
Always full up yet lost weight
Pain during sex
Bleeds between period
Constant lower abdominal pain (gets worse during period and ovulation)
Strangle bowel movements too
One painful boob which leaks

They've ruled out UTI and BV (which I knew it wasn't anyway!)

How quickly did these symptoms come on for you? My GP said she doubted mine is endo because of how sudden it developed (past 3 months).

I was told it is most likely chlamydia (despite having a tests when first got with DH and we both haven't slept with anyone else since). GP said test could have been wrong back then or i just hadnt caught it off DH at that point. Look up chlamydia symptoms and see if that sounds like something for you? Tbf does sound pretty close to mine.

Or potentially could be PiD, again usually caused by chlamydia or other infections.

I've got an ultrasound scan 10 days time to see if there's any ovarian abnormalities. Potentially could be a cyst (or ovarian cancer).

Hope you're aren't getting to worried OP. The symptoms for cancer are so similar to symptoms of other less major health issues.

I know it's been years so you may not even be on this site anymore but just wondered if you ever found out what all these symptoms were? I have the exact same symptoms, am on the waiting list for a lap but they're driving me crazy.

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