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MacMillan nurse rage - AIBU?

1 reply

howwillthispanout · 09/05/2018 21:32

Not brave enough for but am feeling very delicate and cross. DH has cancer (for second time - same cancer) For the first time we have been assigned a MN (MacMillan Nirse) All good - lots of tests for past three months. No MN contact - non required - we are coping and just waiting as we did before. It's not easy but we feel in charge and engaged. Last Thursday we received a call totally out of the blue from "our" MN. She asked if we'd had latest test ((scan) we said yes - she said she'd chase up. Great we thought - someone to advocate on our behalf. She came back to us within the hour and said there was a cancer conference about our case on the Friday morning and we'd be told Friday afternoon or Monday (yep BH Monday). It's now Wednesday and we've heard ziiltch- we have phoned several times but it goes to answerphone. We have spent our whole weekend on tenterhooks - thanks to MN - what did she expect and why do they put you through this? Feel like we are just a box ticking exercise.

OP posts:
wormery · 09/05/2018 21:39

That is very frustrating but there may be a reason, you don't know. Is there a helpline or a national number you can call or do you know if a doctor will be there, could you call them.

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