Have you suffered from severe tiredness for years and...

[TenancyTroublesAgain]

Eventually found out the cause?

I have had really low energy for several years. I've finally been referred to an endo to look at some things further.

I'm so drained. I hope I finally get an answer.

What was the cause of yours after all that time?

not me, but I've read that story before. It seems like sometimes just knowing the cause, even if there is no cure, makes it more manageable. Bump for you in meantime.

I did, it was exercise. The more exercise the more awake I feel. However if you're being referred that suggests that maybe you might need some extra help?

Is tiredness your only symptom?

Yes. Overwhelming tiredness that was not relieved by any amount of sleep. Diagnosis = sarcoidosis (an autoimmune disease).

There are many, many causes though, OP. So just get all the tests done and keep at the doctor until you get a solution.

I'm guessing you've tried all the obvious stuff like Vit D etc?

Yes, recently diagnosed with lupus which has subsequently been downgraded to uctd

Yes. But not just tiredness. Tiredness and joint pain. About 20 years after I first started going to the doctors about it, a rheumatologist diagnosed ankylosing spondylitis. (I’d seen several rheumatologists before who hadn’t diagnosed it).

Yep I did, kidney disease but that is easy to screen for so make sure your doc has run a kidney function test.

Yes, fibromyalgia but also accompanied by pain.

Good luck op

Someone close to me had this and was eventually diagnosed with Hepatitis C. She then died from a related illness. I have no idea why nobody thought to test her for this for so long.

Severe exhaustion, joint pain and a general feeling something isn’t quite right.

Never found the root cause, doctor utterly unbothered...sort of stopped even trying to be honest, I think I’d just get labelled as ‘hysterical female’ if I pushed any more. DH keeps telling me to go back and be pushy, and I keep telling him that doesn’t work for women :/

Any difficulty shrugging off minor colds and coughs?

I'd ask your GP for a blood test to check your thyroid activity.

Yes, autoimmune neutropenia. I'm still tired but at least I know why!

I'm following this. I'm the same. I've had various tests over the years which have found nothing but low ferritin (not anaemia). Iron supplements help a bit but I'm still exhausted. I'm 42 and I first asked for tests in my 20s!

Yup, sleep apnoea. Slept loads, always felt like shit. Now better but overweight and underfit so not as energetic as I could be. However as the underlying exhaustion is finally easing (after nearly a year of treatment) am ready to start embracing the lifestyle to improve that.

Yes. B12 deficiency. I don't absorb it from food and now have regular injections which has changed my life.

It was diabetes with me (type 2). I had every cough/cold virus known to man, was permanently ill, tired and run down. And would sleep from 10pm to 8am every night.

I'm now on medication, have changed my diet and feel absolutely amazing, I haven't been ill for well over a year. I take a multivitamin every day (Floradix) and walk around 3-4 miles a day with the dog. DH said the other day that it's like having a new wife.

@EggysMom yeah, in fact I've been ill with 'colds' that dragged on for MONTHS over and over for the last 2-3 years. Two rounds of antibiotics they gave me this time... Before that I rarely got a cold.

In fact I have an endo appointment coming up to investigate a similar to thyroid condition, I will make sure I get the thyroid checked fully too.

Yes, Primary Hyperparathyroidism.

Lots and f ther symotoms. Took me about 15 years to get diagnosed.

Nothing to do with thyroid btw.

High dose vitamin d spray has helped me.

Fibromyalgia
Vitamin B12 deficiency
Vitamin D deficiency

Still knackered