Long post so please bear with me.
My 16yr old DD has been going to the doctors since Aug 2017 for various symptoms including fatigue, muscle ache sore joints, pins & needles in hands and feet to name a few. I have 4 brothers and 4 sisters and as Autoimmune conditions have been found in 5 of us, the GP tested for a variety of things RA, Lupus, Coeliac and a raft of others. Apparently her TSH came back borderline and we were advised to wait 3 months to have this retested. In the meantime symptoms persisted. In Sept she was told that her BMI of 26 showed that she was overweight and needed to eat more healthily. Her TSH was again tested in Jan and was again borderline. She has been put on Folic acid and iron tablets and was told in Feb that her T3 & T4 levels were fine. She became more and more despondent and began to think it was all in her head. The situation was made worse by the fact that the surgery would only discuss her results over the phone with her not me due to her age. 3 weeks ago she became excessively thirsty, had an increase in urination and I noticed she was losing weight. We managed to see a locum GP who sent her for blood test for kidney function and diabetes. On 29th March we were called in to the surgery and told that she had Type 1 diabetes. Her level were so high at the time that we had to go straight to A&E and she had a 3 night stay in hospital. All very traumatic and distressing.
Whilst collecting her prescription from the surgery we were called in to speak to a long term locum, who advised that he advised that she had seen a total of 6 GP's ,most of them locums and that he felt her treatment had been poor. He considered this a "Significant Event" and advised that we should take the matter further.
We have had exemplary treatment from the hospital and diabetic team. I honestly can't fault them. Whilst I am aware of the strain that GP's are under and don't want to point the finger of blame at anyone, I think a lesson can be learned from this.
Does anyone have any experience of how a Significant Event is handled and what outcome we should expect?
Thank you for being patient with such a long post.