Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Primary bowel secondary lung cancer

18 replies

StealthPolarBear · 26/03/2018 18:48

(not me)
What is likely to happen? What are the treatment options?

OP posts:
lljkk · 26/03/2018 18:54

Sorry SPB, any cancer that spreads is not good.
Treatment options partly depends on age & condition of the patient.

StealthPolarBear · 26/03/2018 19:02

Suspected so. Ah shit.

OP posts:
lljkk · 26/03/2018 19:10

Write down your questions. Help the patient write them down, too.

StealthPolarBear · 26/03/2018 19:29

She wouldn't let me :(

OP posts:
tantalisingduck · 26/03/2018 19:46

Not quite the same but I had bowel cancer that had already spread to the liver when discovered, with a suspicious small lesion on lung.
I am still here 14 years later, with 7 years since the last "cancer incident". Just on annual check up scans now and those may stop next year of all still clear.

In my case the doctors wanted to stabilise the disease so I had chemo first, then a bowel operation, more chemo, then a liver resection, a third lot of chemo and then several radio frequency ablations on small suspicious spots on my liver ( and on the lung - though the jury is out as to whether that was cancerous - the approach was to zap it with the laser just in case) and then another liver resection because one pesky lesion kept reappearing.

That all sounds like very hard work - but the doctors were very good at taking one step at a time to stop things from becoming overwhelming.

Certainly when I was diagnosed all the literature and the internet was very gloomy about survival with secondaries. But I've learned that everyone is treated as an individual now, what works for one doesn't work for another and vice versa so nobody can really say what will happen next, but it may well be chemo pre surgery for your friend.

Wishing her the best of luck

StealthPolarBear · 26/03/2018 19:48

Woo hoo lovey to hear and I'm pleased for you. Wishing you many more decades Flowers

OP posts:
rebelrosie12 · 26/03/2018 19:50

Very serious I'm afraid. I think the nhs website has survival rates. It helped me prepare for the worst when my dm had this last year.

FiveGoMadInDorset · 26/03/2018 19:53

DH has the same as tantaslisingduck but sadly without the same result, again his started with chemo, then liver resetction, then bowel op. Unfortunately what they thought was fluid from the bowel wasn't and it is back in the bowel and spread to lungs, he is on a regime of chemo every three weeks, no progression in tumours since November which is positive and although tired after chemo he is generally well.

Absolutely agree that everyone is treated as an individual and his oncologist who is lovely, discussed the pros and cons of every type of chemo she was looking at.

Are you next of kin? Would she allow you to contact the specialist nurses? Can you go to appointments with her?

tantalisingduck · 26/03/2018 19:54

There is a cancer support thread on here - which I discovered when I was through the worst so have only really lurked there - and one of the main contributors on that - WhatWouldLesleyKnopeDo - has bowel cancer with lung mets. She may be a good person to ask, if your friend has any particular questions, since her experience is more current than mine.

One thing for you and your friend, the very worst time in the whole cancer "journey" ( hate that word!) is immediately following diagnosis waiting for the treatment plan to be agreed and start. Everyone I talk to says the same - so just help her hang on in there: the waiting and uncertainty and shock of the early days is horrible but will pass.

tantalisingduck · 26/03/2018 19:57

Ah, I am sorry to hear that FiveGoMadInDorset. I hope the chemo keeps things under control in the long term.

WhatWouldLeslieKnopeDo · 26/03/2018 21:07

I've got bowel cancer with lung secondaries. I was originally diagnosed with stage 3 in 2012 and then found out almost two years ago that it had returned in my lungs.

Unfortunately lung mets are incurable. Sometimes liver mets are "curable" nowadays, though not always - sorry about your DH FiveGoMadInDorset Flowers

Mine is currently described as incurable, but treatable. I have been having chemotherapy and a biological therapy drug which has kept the tumours relatively stable. The exact drugs offered depend on the genetics of the tumour, as different mutations affect how it will respond. Chemo is no fun, but the side effects are manageable.

Depending on the number/size/location of the mets then radiotherapy or ablation is sometimes an option too.

I wouldn't recommend reading about survival rates or anything online. The stats are always a step behind. And it really does vary patient to patient so it's better to discuss with the medical team if that's what the patient wants.

I'm really sorry about whoever it is that has been diagnosed Flowers

If there's anything I can help with please do ask.

Hello tantalisingduck :)

StealthPolarBear · 26/03/2018 21:37

Thank you all. It's incredibly kind to respond

OP posts:
StealthPolarBear · 27/03/2018 22:27

The news is apparently not good here

OP posts:
myrtleWilson · 27/03/2018 22:40

Ah Stealth - am so sorry. My sister had terminal bowel cancer so if it helps at all I'd be more than happy to chat with you?

StealthPolarBear · 28/03/2018 00:01

Thanks. So sorry about your sister.

OP posts:
WhatWouldLeslieKnopeDo · 28/03/2018 07:09

I'm really sorry to hear that Stealth Flowers

Chasingsquirrels · 28/03/2018 07:17

Sorry to read this StealthPolarBear, no experience but have been though a cancer diagnosis, treatment and development with my DH.
Obviously don't know how close your someone is but be kind to yourself and those around you at this time and in the coming days x

StealthPolarBear · 28/03/2018 08:22

Thank you. Love to everyone

OP posts:
New posts on this thread. Refresh page