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Bladder pain and urgency- no UTI. desperate for answers!

156 replies

sunshine05 · 20/03/2018 19:13

So I've had urgency and frequent urination and intermittent bladder pain for a month or two now. Initially I thought it was a UTI and urine test showed some bacteria, doc gave me antibiotics but they did nothing and the test came back from the lab as normal. So now I've got a private referral but it's in a months time and I'm in pain and so uncomfortable. I don't know if it's an irritated bladder, or the horrible interstitial cystitis or something else. I have a blood test booked for this Friday to rule out more sinister possibilities. I swing from not being too worried to thinking that something awful could be wrong with me. Yesterday I had a eureka moment thinking it could be the sweetener in my protein powder I have in my shake after workouts but now I'm thinking it's unlikely- although I'm going to cut it out and see. Side effects of sucralose (amongst other horrible things) is bladder irritation/problems so it's worth a shot. But I'm just so fed up and miserable. At the moment the pain is quite severe. I don't know how I can cope with this for a month before getting more tests done. And I'm terrified that this could become a chronic illness that I will have to live with for a long time. Anyone else had similar issues, positive outcomes? Anyone have any ideas/thoughts??

OP posts:
MelvinThePenguin · 21/09/2023 17:37

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Chas23 · 21/09/2023 18:12

Thank you for your response, i appreciate it.
Are you still taking those medicines or did you quit taking them, if so, how long did you have to take them?
I am trialling taking antihistamine which seems to help a little but i know that when i stop taking, bladder pain will come back. I just wanted to know if there is hope for a normal life, a healthy/healed bladder without relying on drugs long term.
Thanks.

Chrisinthemorning · 21/09/2023 18:43

@Chas23
How long have you been on antibiotics for?
Cystitis pain is an infection until proved otherwise. Don’t go down the path of other drugs, pain/ depression drugs without a good long course of antibiotics and Hiprex.
I had full strength Co Amoxiclav for 3 months, nitrofuratonin for 3 months, both with Hiprex. Stopped antibiotics, still on Hiprex. 3 days of antibiotics after sex.
Would consider myself cured but intend to stay on the Hiprex etc for life.

MelvinThePenguin · 21/09/2023 20:22

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KennedyClan · 30/12/2023 23:48

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