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Pyloric stenosis in newborns

30 replies

popsycal · 06/05/2007 17:47

My sister is due next week and has just found out from her partner's mum that he had Pyloric stenosis at 6 weeks and had to have an operation. SHe has since read that it is familial and the baby is 20% likely to have it.

She is too worried (and cross at just finding out now!) to google so I said I would find out a bit for her.

Does anyone have any experience of this condition?

Many thanks

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Pruni · 06/05/2007 17:52

Message withdrawn

popsycal · 06/05/2007 17:59

SHe is having a girl and from what I read it is more common if it runs on the mother;s side of the family

fingers crossed

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Pruni · 06/05/2007 18:01

Message withdrawn

popsycal · 06/05/2007 18:02

just quickly searched the archives and it seems that Ghosty's ds had it....will keep this bumped up incase she is around......

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popsycal · 06/05/2007 18:04

ooooh and sobernow was the first female baby in warwickshire to have it

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CaptainUnderpants · 06/05/2007 18:05

My husband had it , had an operation very early in his life , I have two boys , neither of them had it .

As someon said it is not possestting , it is way more than that - projectile vomiting.

Pruni · 06/05/2007 18:05

Message withdrawn

popsycal · 06/05/2007 19:59

...and her first?

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fransmom · 06/05/2007 20:01

sphincter leading to the stomach

twentypence · 06/05/2007 20:04

Ghosty's ds had it _ I will try to keep this bumped in the NZ time zone, but she will be asleep for the next couple of hours.

Ceebee74 · 06/05/2007 20:12

Hi

My DS (now nearly 10 months) had this (I think me and Ghosty are the only 2 people on MN).

Symptoms are as already described - forceful vomiting (books describe it as projectile but DS's wasn't - it came out with force though)

It gets progressively worse as time goes on - DS was sick occasionally as a newborn and then by the time he was 6 weeks old, he was being sick once a day, then by 7 weeks he was sick in between every feed etc. Also, another thing to look out for is the consistency of the vomit (nice uh?) - DS used to vomit up loads of liquid, plus curdled milk etc as the milk has nowhere to go but to sit in the stomach.

He was diagnosed by blood tests followed by a ultrasound scan of his tummy to confirm it - and it is corrected by surgery.

It is more common in girls and it does seem to come through the mother's side - my dad can remember his younger brother having an operation when he was a couple of weeks old for feeding problems though we do not know if it was this but probably was.

If you need to know anything else, guessI am the expert

popsycal · 06/05/2007 20:14

thanks ceebee
you mention itb is more common in girls>
every wher i look says it is a lot more common in boys...

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Ceebee74 · 06/05/2007 20:15

Sorry meant boys - duh!!

popsycal · 06/05/2007 20:18
Smile
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Ceebee74 · 06/05/2007 20:49

Also, I should add that DS now pukes at the drop of a hat - which we think might be a habit he formed during those early weeks!

Also, I notice another poster said that the vomiting must be distressing - in DS's case, he was not (and still isn't) distressed at all. He just used to puke everywhere (my washing machine was on constantly) and then giggle

BethAndHerBrood · 06/05/2007 20:59

My DS2 (now coming up 10 months) had PS when he was 3 weeks old. Was diagnosed by ultrasound, and he had an op to correct it. He has a Tiny scar in an arc round his bellybutton, that will not be noticable when he is older. The transformation after the op was amazing. He had been really ill for a week, we had to wait a few days for him to be well enough for surgery, he was on a drip and nil by mouth, sleepy all the time. But he had his op at luchtime, at 4pm he had a feed (his first for 4 days) and we went home at 6.30pm. I was b/f and by expressing in hospital I was able to keep going. He was so much better immediately it was incredible.

Also must agree about the vomiting, DS2 didn't seem bothered by it at all. It was heart wrenching to watch him though. The worst week of my life.

Ceebee74 · 06/05/2007 21:01

Beth - our DS's must be the same age - when was yours born?

It is awful isn't it - the worst part had to be handing him over to the nurse in the operating theatre - me and DH went for a walk straight after, both crying!!

Does your DS puke a lot now??

BethAndHerBrood · 06/05/2007 21:05

DS2 was born on 10 July.

I completely agree. The hardest thing I have ever had to do - hand DS2 over to a stranger and walk away. I'm filling up just thinking about it. I cried more in that week than the rest of my life put together. I'm not a crier normally.

Ceebee74 · 06/05/2007 21:06

Ds born on 14 July although he was 8 weeks when he had his op - you should pop on to the July 2006 thread - they are all very nice on there.

Pruni · 06/05/2007 22:18

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Christie · 06/05/2007 22:57

This reply has been deleted

Message withdrawn at poster's request.

twentypence · 07/05/2007 02:17

Bumping for Ghosty who should be up and at em by now.

ghosty · 07/05/2007 04:02

Here I am

Christie for your story ...

Yes, DS had PS ...
It is a rare(ish) condition (1 in 4000 I was told) that occurs mainly in first born boys (not common in girls at all but can happen).
To my knowledge there is no one in our family that had it before.
Generally babies are born appearing healthy and then a few weeks on they start being sick as the Pyloric Sphincter muscle at the base of the stomach thickens and stops food going down into the intestine so comes up instead. As the muscle gets thicker the less food gets through and so eventually the baby gets quite poorly.

DS was pretty sicky from birth, but it got bad pretty quickly. He was 11 days old when I phoned someone about how often he was sick. Our problem was that NO ONE believed me how sick he was ... everyone said it was reflux ("He can't have PS, he is too young").
Baby Gaviscon was prescribed which made him projectile porridge [eeew]

Anyway, he was 3 weeks old when I was pretty desperate, he started losing weight and sleeping a lot (when he wasn't screaming with hunger and throwing up). I used to feed him sitting on the side of the bath, or standing by the kitchen sink because I knew he would be sick . I was still told it was reflux "Babies are sick Mrs Ghosty, it is called Possetting" [bastard GP]

Can you tell I am not bitter?

It was my mother (an old school midwife) that marched us down to her doctor and told them she wasn't leaving until DS was referred

Another bastard doctor at the hospital STILL doubted how sick DS was and told us we were neurotic new parents.

We went back two days later and they saw how much weight DS had lost in those two days ... Indeed he was 7.5lbs at this point but was 10lbs at birth - so his weight loss was pretty dramatic. He also slept 15 hours the previous night

Finally diagnosed with an ultrasound by a very experienced radiologist who then blue lighted DS to Southampton General.

24 hours later (after drips etc to get him rehydrated - he was too sick to operate on immediately) he was operated on and was on the road to recovery. He was exactly 1 month old.
He has a certificate for bravery from the operating team [lip wobble]
I can count on one hand how many times he has vomitted since - he is 7 and a half, is very very fit, strong and healthy and is the best eater I know of his age

Our experience was particularly traumatic, not because of the condition - which IS easy to diagnose and fix, but because of my bastard patronising GP and my stupid HV who would not believe that DS was ill.
It need not be like that for anyone ... I stopped seeing the GP after that (he had been my GP for years).

It used to be a killer of babies but absolutely is NOT now ... it is easily found and fixed. DS has a good looking scar to the left and slightly above his belly button. These days it can be fixed through the belly button so no scar. The operation is a simple 20 minute procedure where they cut the muscle to relax it.

If your sister's baby has it she has nothing to worry about - honestly.

In fact, despite our trauma, I would go so far as to say, I would much rather DS had had PS than he had had proper Reflux ... chucking up for months and months ... yuk.

Oh ... and yes, it was projectile. When I held DS in my arms standing up, he could throw up vertically and it would hit the ceiling (then drip down on my head - nice)

I wouldn't say he was distressed when he threw up that much ... but he was a miserable screamer of a baby anyway so I couldn't tell ... by the end, just before he was diagnosed he used to have the sad old man face that said, "Oh no, not again, I am so fed up with this" ....

HTH

ghosty · 07/05/2007 04:12

Sorry for bloody long post ...
Can't help it ...

popsycal · 07/05/2007 06:45

Thansk Ghosty - so sorry that it was so hard for your ds to get diagnosed - glad he is well now!

I have told my sister that she ought to ask the midwife to put it on her notes or the baby's notes when it is born. I think she is a better position than you were, Ghosty, as it is in her family so they would more likely take it seriously. She will be keeping a really good eye on the baby and acting quickly should any of the symptoms start happening. And I will make sure that she is forceful about it!

Many thanks to everyone for sharing their stories and for your advice.

Popsy

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