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Original poster

Hallucinations after tracheostomy.

54 replies

Richone · 01/03/2018 06:00

Hi, I recently had a 10 hour operation which left me unable to talk for two months. My surgeon is convinced that I had been hallucinating due to the anesthesia. But I don't believe him because it was so horrible and real.
Has anybody had a similar experience in the last five years or so? The tracheostomy bit is very relevant.
I am a 64 year old bloke, which I think may also be relevant.
Up until 2 years before the operation I drank a bit, but I stopped.
Is there a better place to post this? Dya think?
Thanks

I wanted to be Rich1 but somebody already baggsed it. Got no money at all nearly.

OP posts:

picklemepopcorn · 01/03/2018 18:46

If you report the detail of your hallucination (?) to PALS, they can be on the look out for other similar experiences. I think you'd feel better if you could report it to someone then forget about it. You can't prove it either way on your own.

Original poster

Richone · 01/03/2018 18:58

Tried all that and at least one of the perps is still there and probably feels invincible. This must be stopped, feel a bit like Batman.(not really, you'll think I'm nuts)

OP posts:

picklemepopcorn · 01/03/2018 19:02

I don't see how you can- you need to wait for corroboration.

sillyswimmer · 01/03/2018 19:11

A condition called delirium is very common after traumatic surgery. I work with people researching it and some of the experiences the patients go through are very scary. You definitely need to report what happened

Original poster

Richone · 01/03/2018 19:29

On two occasions I have asked to be shown written evidence of my missing 13 hours i.e. a chart or anything. On both occasions I was told that there wasn't any, just a digital printout. Since then I have spoken to the records lady who told me it would cost £17 for photocopies. I asked her about the digital bits and she told me that the hospital had not got that far with computerisation. It will be interesting to see what turns up, if anything.

OP posts:

Ivebeenaroundtheblock · 02/03/2018 03:43

Yes, they will check the babinski reflex on both feet, if they suspect a head or neck injury they will check rectal sphincter reflex as well.
If your not medically knowledgeable it probably is very scary.

RavenclawRealist · 02/03/2018 03:54

Hallucinations post anaesthetic are very common but I think what you are suggesting op is that you didn't hallucinate at all but that you were mistreated in the immediate period post operation when people thought you were to weak/out of it to notice or report??

That's really difficult to say as certain things that may seem cruel/odd such as stimulating a pain response are normal care to access levels of sedation/neurological function ect.

You sound like you have done the right ring requesting a copy of your notes I hope going through them gives you the answers you need

NoStraightEdges · 02/03/2018 10:26

My DM had an emergency trach and didn't hallucinate. Although she did hallucinate when she was on morphine/oxycodone.

She also had her heels and vulva area 'scratched' to check for spinal cord damage. All above board and done legitimately.

It all sounds very frightening. Are you still in hospital?

Original poster

Richone · 02/03/2018 12:26

As you can see, nobody will believe me, which makes for a perfect victim. And yes, it is a group of people. And they're still there.

OP posts:

NoStraightEdges · 02/03/2018 12:47

Sorry, I think I've misunderstood.

Can I recap tomsee if I've got it now I've re-read everything more carefully?

You had a long operation, resulting in a trach and nerve damage to your arm leaving you unable to speak and write.

In the 13 hours post op you had an abusive experience at the hands of multiple staff. You've been told that you're imagining it-or hallucinating it.

But another member of staff has confirmed the abuse but won't help you any further? And also you can't get access to your notes for that 13 hour period?

In that case you need to approach PALS at the hospital to help you and to be really clear about what's happened to you. Whilst I can completely understand that you were vulnerable you seem less so now and in a place to tackle this.

The only thing that doesn't make sense to me is your proposed motive of money-why do you think these people are doing it for money and who is paying them to do it?

picklemepopcorn · 02/03/2018 13:33

I don't think people here disbelieve you. I think they are explaining possible explanations you may not be aware of.

It was obviously very traumatic for you, whatever happened. Have you had any trauma counselling?

Original poster

Richone · 02/03/2018 13:55

The operation was to remove a tumour from my tounge,so:

1 Cut off large part of tounge and chuck in bin.
2 Take some muscle and arturies from left arm and put it in mouth, This is called a flap.
3 Take some skin from stomach area, left side below ribs and graft it to arm.
I can't remember how long I was in the ICU but about 2 hours before being moved to a proper ward a very young nursing assistant approached me saying that she had come to remove the stitches from my stomach. She then grabbed hold of the cotton? and yanked it out. If I could I would have screamed I would have. The young girl lept back and in her hand she was holding the piece of cotton which was about a foot long, she said "eeeek, that shouldn't have happened, I did that last week and the stitches just unraveled and the cotton was that long".(indicating about a yard). I think the proper stitches were removed during the night and hurriedly replaced. I don't know why.

OP posts:

Ivebeenaroundtheblock · 02/03/2018 14:04

What was done was poorly or not explained. I’m sorry to hear this.
The long cotton was most likely packing.
Biomedical waste is not thrown in the garbage.

Original poster

Richone · 02/03/2018 14:24

When I had about 4 inches of rib removed for a lung operation I asked the surgeon if he was going to put it back. He said" no, I'm going to throw it in the bin". I only got MRSA that time?

OP posts:

Original poster

Richone · 02/03/2018 14:40

For those of you wondering, no I didn't.

OP posts:

picklemepopcorn · 02/03/2018 15:44

You have had bad luck.

Ivebeenaroundtheblock · 02/03/2018 18:18

No you didn’t what?

NoCureForLove · 02/03/2018 18:28

Have you suffered from any mental health problems OP?

Original poster

Richone · 02/03/2018 19:42

I didn't sue NHS for negligence (MRSA)
I am not an alcoholic
I have no mental issues
I have started the process for getting copies of my hospital records
I will be amazed if I ever get them.
I will post the results of my enquiries.
Maybe they helped themselves to a bit of liver and enjoyed it with some
fffava beans
I have no mental issues

OP posts:

Vitalogy · 02/03/2018 20:13

Maybe they helped themselves to a bit of liver and enjoyed it with some
fffava beans Good job you've got a sense of humour about this too, if you don't laugh you'll cry!
Hope you get the medical notes soon.

Ivebeenaroundtheblock · 02/03/2018 20:48

sorry but contracting mrsa is not negligence it is a risk of going in a hospital.

Original poster

Richone · 03/03/2018 01:27

Leslie Ash.

OP posts:

picklemepopcorn · 03/03/2018 07:54

Depends on the care received. Occasionally I suppose there is substandard practice.

SunnySkiesSleepsintheMorning · 05/03/2018 19:20

Richone, did you have a tracheotomy post op?

Original poster

Richone · 05/03/2018 20:17

Hi, I went in without one and came out with one, is that yes?

OP posts:

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