Misdee,
I really don't want to speak out of turn - I understand that you guys have breathed and bled every step of the way, so i hesitate to wade in with my advice... but...
You've done the waiting patiently thing - and now you need to get someone with authrity on your side to 'cut through the crap'.
I understand the reluctance to make a fuss; to upset people who've been good to you - I understand you're exhausted and barely hanging on where you are - but that is what management are there for, and that is the mechanism for resolving extreme cases, and cases where the system isn't working.
I hear what you're saying that the medics won't list him as urgent - but they're paid to see the finer detail. People higher up are paid to see the big picture - and the big picture is that it is clearly not right for a father of two to be waiting two years for his transplant.
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Write to your MP (or go and see him in the surgery)
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Write to each member of the board at the harefield
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Turn up at the next board meeting (24th May) and present your case in person. Members of the public are allowed in - see this extract from minutes Dec 2006
"A member of the public who had been a patient at Harefield Hospital
for seventeen years following a successful heart transplant operation
drew the Board?s attention to difficulties he was experiencing as a
consequence of the closure of the Dental Department over Christmas
and the New Year. [it then goes on - but the point is they routinely hear supplicants]"
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Write to the minister for health
Make sure that later no one can say to you 'oh, we're sorry, we didn't know'.
Your message in each case that you're grateful for what's been done, you appreciate the pressure the medics are under, but you're really desperate now - and you've been waiting for a really long time.
Again, I'm sorry if I'm speaking out of turn - just wanted to give you my outside perspective.