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I can't find my thread about my fibromyalgia, so I'm starting this one

6 replies

saltire · 01/05/2007 20:40

The flare ups have been quite bad recently, and the pain killers I have don't touch it. Greeny suggested trying called Syndol, which is good, although it doesn't really ease the pain, it just makes me sleep better.

Can anyone suggest any other painkillers I could ask the doctor to try, I currently have co-codamol 30/500mg.

Does anyone else on here have it.
Fibromyalgia that is

OP posts:
nickytwotimes · 01/05/2007 20:48

my aun thas just been diagnosed with this, saltire, so i will watch your thread with interest. sorry, i have no idea what is helpful as i am just starting to learn a little about the condition - i know she takes cocodamol and ibuprofen on the advice of her doc. she's also been told to exercise regularly and is being referred to a pain clinic, bu tyou've probably been down these roads? hope someone more knowledgable will be around soon for you!

saltire · 01/05/2007 21:48

hi nicky. I have been advised to get a referral to a pain clinic, but I'm due to move south in a bout 6 weeks, so I am waiting till the move. I jhave also been told to exercise, but only when I don't have a flare up. I take amitryptiline 10mg at night, for sleep problems caused by the fibro. Does your aunt get these?

OP posts:
Ifonlyhewould · 02/05/2007 09:24

If you wanted to tyr a more natural approach then try cutting our gluten and wheat from your diet. It might take a couple of weeks before you notice the difference but i'm sure you will notice. You could also take a look at the supplement 5HTP. Hope you are feeling better soon

GreebosWhiskers · 02/05/2007 09:29

Saltire - don't have any advice for you (sorry) but just noticed you live in Fife. I'm in Dunfermline - whereabouts are you?

nickytwotimes · 02/05/2007 19:02

saltire, my aunt takes ssri type anti depressants to help mood and energy and she feels they help. ifonly, aunt tried various elimination diets to no avail but obviously her diet plays a part, ie feels worse if eating loads of crap!!

careformum · 15/05/2007 18:39

I used to have it, fibro that is, and also CFS/ME along with IBS. Five years of torture. I had 6 years of lower back pain, and carpel tunnel (for a while), prior to fm and me.

When my youngest son started full time school, I started swimming in a warm pool, not swimming exactly, but relaxing, floating and stretching, using the sauna and steam room. This helped me to recharge my batteries, just enough to get up to school and back again. It did help, my muscles were a little looser and I felt almost refreshed. I tried to get there everyday.

On diagnosis I was recommended Tramodol (not sure if this is the right spelling) by the Fibromyalgia association , I took one at night and found that this did help to relax the extreme tension in my muscles. Not quite so much pain. The drug seemed to divorce my head from my body, I was aware of the pain, but it wasn't shouting at me. I found that they didn't have much effect after a while, they are like morphine and are addictive. Some doctors won't prescribe them. Tramodol did give me some relief.

What helped me the most was sports medicine/sports physiotherapist. I am a well and pain free woman again. This physiotherapist was able to identify and treat my unstable sacrioiliac joint and lower lumbar spine, with manipulative physiotherapy.
I was in rehabilitation for 5 months, my spine was realigned and my muscles retrained to keep my spine in place.

I was given gradual and tailored physiotherapy and exercises to do everyday. These were pilates exercises.
I had to strengthen my core muscles before I could work up my spine to my neck and shoulders.

At times it was not easy. I do not live in pain any longer.

My candida took a while to settle down. I cut out wheat from my diet. I eventually found 'Dr Joshi's 21 day detox diet" a small easy to read paperback. This was excellent. After I finished the 21 days, I was recommended to take acidophillus, as found in live yogurt and this has cleared it.

Excess stress and can bring on a candida attack, but never as bad as before and now is under control.

I didn't take antidepressants but a friend of mine does. Her prescription of amitryptiline was gradually increased from 10mg to 75mg. She has had a bad reaction to them. All her hair has fallen out. The Doctors guidlines do not tell them that this is a side effect, the patient leaflet however does.

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