MS diagnosis

[Sohardtochoose]

I’ve been diagnosed with MS and I’m waiting for an appointment to see the MS specialist Neurological team.
I’m resisting the temptation to search on line but thought I’d ask here.

It’s a wide spectrum thing isn’t It? Some people have MS so severely that they are registered disabled and others, like me, have it so mildly that they didn’t know they had it? Is that correct?

Agree Battleax! It scares me to hear that GPs are telling people there are no drugs for MS that work! There are plenty that work...none so far that cure...but plenty that slow down disease progression.

See OP? Plenty of options.

Glad to see you've been getting good advice OP. My DH has had MS for probably nearly 20 years - although only officially diagnosed about 13/14 years ago. He is lucky at the moment in that his MS is what used to be classified as "benign" - but I don't think this classification is in use any more. He has occasional episodes - but at the moment nothing more than a slight headache, or feeling of thickness in his legs but no symptoms remain after the episode. He has never been prescribed medication as the Dr's view was that if he had been on medication and his MS presented as it has been they'd all think the medication was doing a good job - so at the moment no need for it. We are of course aware that his condition can change over time but at the moment no change to lifestyle for him. Best wishes and hope you are able to get your head round the diagnosis.

Wow, thansk so much for all the extra posts.
Ekorre and GrockleBocs, can learn all about it together huh?
Thanks Tara336.
TeeBee, I’m in my early 50s. The neurologist said that he thinks, from learning some of my medical history, that I’ve had MS for years.
Battleax and MyrtleWilson, thank you for talking so freely about your situations. It’s all helping.

I still haven’t got my appt for the MS neurologist yet and I do feel in limbo rather but hey ho, there’s folk a hell of a lot worse off than me waiting longer for appts so I’m not complaining.

Thanks again to all of you for posting.

You don't need to sit around waiting for your appointment. You could use your time arming yourself with information. The MS Society is a good source of information and has a repository of local support groups, which you may want to consider.

Also, as myrtle said, drugs may not be necessary. As I said in my initial post, MS is different in every individual.in my case, drugs Haven't been needed so far (19 years) so you will be advised as to what's right for your particular case. I would also second speaking to the ms society if you feel that's right for you too.