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pompholyx eczema

66 replies

ShakeYourTicTacs · 13/12/2017 18:55

Does anyone have any experience with this please?

I have never had eczema at all before this episode. It started on one finger and has gradually spread.

I went to my GP as it got infected. Was told it is most likely brought on by stress. Was given a moisturising cream to use for hand washing, instead of using soap.
I was also given a steroid cream to apply twice a day.

2.5 weeks later I went back to my GP as it had not improved and had spread further. Was given a stronger steroid ointment and told to apply it twice a day.

That was a fortnight ago and there is a slight improvement, but not much.

I cannot take anymore time off work so requested a telephone consultation with my GP. Who then said there was nothing they could do without physically seeing me.

How the heck do I get rid of it? It is driving me bonkers!

It’s itchy and sore and weeps. I’ve resorted to covering my hands after applying ointment or cream as much as possible so I don’t catch it and in hopes it soaks I’m better.

I don’t know what else to try. I’m in my probationary period at work so cannot really go back to my GP for a while.

Any advice please?

OP posts:
jbee1979 · 14/12/2017 22:07

Following. I am sick of it. My right hand is terrible at the moment, and it's been traumatised by the democrats 😣

nong45 · 14/12/2017 22:11

I had this in my 20s when I was very stressed and it started on my arms, my inner elbows? It spread to just about all the tender areas of my body and went infected. It was just awful. When I eventually found a GP who knew what it was I was prescribed antihistamines, strong steroid cream and had to keep heavily moisturising. I was worried about skin thinning though as I had to use so much cream. It gradually went over a few months. I’ve only had patches occasionally on my hands / fingers since and intensively moisturise when I do.

ShakeYourTicTacs · 15/12/2017 06:39

I didn’t realise how common this was. I really feel for you all as this is making me so grumpy at the moment.
Even hand washing after going to the toilet is very painful because it means getting it wet.

OP posts:
Muchtoomuchtodo · 17/12/2017 22:19

Never thought about the auto immune thing.

I've got auto immune hypothyroidism.

Chocolateteabag · 20/12/2017 01:49

Hi - I have pomphlox eczema on my hands - as well as everything else already suggested - I also use Vagisil when I have a real bad flare up or Tesco own brand haemorrhoid cream (with no zinc oxide)
Both have lidocaine so take the edge of the itch/pain away
It's something else to try if you've tried everything else.
I also have perioral dermatitis on my face and it gets used there too (I have such great skin Hmm)

ShakeYourTicTacs · 20/12/2017 02:00

I am still struggling to keep control of this. But then my stress levels have increased again.

I’m tempted to go back to my doctor, but what else can they possibly do?

My hands are so itchy and sore.

OP posts:
FrankiesKnuckle · 20/12/2017 05:24

I ended up on a course of oral steroids in the summer as mine were so bad and referred for allergy testing too. Mine is a mix of eczema and contact dermatitis.
I'm severely allergic to nickel and MCI (very long name!)
I now avoid products with mci.

www.dermnetnz.org/topics/methylisothiazolinone-allergy/

ShakeYourTicTacs · 21/12/2017 18:21

Does anyone know where I can buy thin cotton gloves from before Xmas please?

OP posts:
FrankiesKnuckle · 22/12/2017 00:25

Boots.

ClementineWardrobe · 23/12/2017 01:02

Shake you won't get these before Christmas but the best gloves I've found are on Amazon: dermatological cotton gloves by all trade direct.

Dingledoodie · 06/07/2022 09:49

Cocolepew · 13/12/2017 19:00

I get this , but mainly on one fibger and it rarely spreads. The only cream that helped was Fucidin H.
Mine seems to be set off by cleaning products/ bleach.
It's ridiculously sore.

Same. I get it on one finger. Never had any type of 'skin condition' ever, but last year, aged 52, I developed Polompholyx AND Rosacea.

The Polomphyx started as a few little tapioca-like bubbles then more, then they started splitting, weeping, drying and cracking until my finger was red raw, itchy and so painful, I could barely type, and my job involves typing all day. So, I can't imagine what it's like if you have it over all your fingers. 😞

I initially wondered if it all had something to do with hormonal changes (Menopause).

Anyway, as it was during the first strict lockdown when seeing a doctor was difficult (and they had more important issues to deal with), I just did some Googling.

I tried washing with a moisturising ointment as advised, etc, nothing worked then I read about someone using Fucidin H, so ordered some online. That was it. It cleared in two or three days.

I still get the occasional small flare during stressful times, and I just get the Fucidin H on it instantly, but thought I'd mentioned it to my doc. He said he didn't understand why Fucidin H had worked!!! He said it might be the small amount of Hydrocortisone in it. 🤷🏼‍♀️ He said if it flared badly again I should just get some Hydrocortisone from the chemists. I still have plenty Fucidin H though so I'll, see what happens once it's used up.

BeautyGoesToBenidorm · 06/07/2022 10:19

I get vicious pompholyx flare ups (huge, weeping, widespread blisters and itching), and the only thing that works for me is Synalar-C cream on prescription and fexofenadine tablets daily. Betnovate did nothing.

BeautyGoesToBenidorm · 06/07/2022 10:20

Also potassium permanganate soaks!

PinkCosYouAreSoVery · 06/07/2022 19:37

I had what the GPs thought was pompholyx eczema on the sole of one foot for nearly 3 years. It was awful, hundreds of tiny blisters, unbearable itching, heat, pain and some swelling. Tried so many different creams (Dermovate ointment and loads of less potent ones, etc) along with athletes foot cream. Potassium permanganate did help bring temporary relief. Couldn't sleep properly so was prescribed Amitrptyline to help stay asleep.Got so desperate I paid to see a private dermatologist and he suggested treating it as a fungal infection. I was doubtful ask had tried fungal creams and it didn't look like typical athletes foot - he couldn't even get a scraping as there wasn't really flaky skin. I went on a course of oral terbinafine tablets, initially for a month and after a week or two the blisters and itching etc started to ease. I was not eh tablets for 4.5 months in the end and ive now enjoyed nearly a couple of months without all those horrible symptoms.Its sill feels too good to be true and im fearful of it returning but for those of you with it on your feet, worth looking into. I really couldn't believe it! I was pretty annoyed my own GP hadn't offered me the tablets, 3 years of torture that could have been sorted much sooner.

Floydthebarber · 06/07/2022 19:47

I have this. Not on my palms but all up the sides of my fingers. Heat and sweat make it worse, sometimes in summer the itching wakes me up but i have already scratched a finger raw. I got fed up trying to find the right steroid cream to treat it. Heavy, greasy moisturisers make mine worse so I opt for something glycerine rich like O'keefes. It does look bad at the moment though and is so sore.

Floydthebarber · 06/07/2022 19:48

Just realised this is a zombie thread and the thread whuch initially lead me to getting my pompholyx diagnosed!

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