Positive stories about children diagnosed with epilepsy as babies, please!

[Proudmummy9183]

So, DS (6months) started having prolonged seizures over 2 months ago. All tests so far are normal and we are waiting for genetic testing results back. Last two seizures have been 45 minutes long :(

He is doing great outwith the seizures, so we are focusing on that and hoping he doesn't start to regress. This diagnosis (epilepsy) is obviously new and we are anxious about it. Would just love to hear some positive stories from people who have been through similar to keep us more upbeat about the situation, particularly how other children have developed as they've grown. We love DS no matter what but there is no knowing at this point how the seizures will go. He is currently on medication at the moment but still requires tweaking every few weeks.

Thanks guys

I'm sorry this is going to be a bit vague, but I know a delightful 18 yr old who was diagnosed with epilepsy as a baby. My aunt, a family friend, was a health visitor and picked it up early. Absences rather than fits. she was only a babe in arms at the time. She was diagnosed and later, as a child, had surgery to remove an area that was 'calcified' from her brain. I think this was done at GOSH. No further fits.

She was slightly developmentally delayed, but there was never any question of her not being in mainstream education. She is very bubbly and popular. Has a job and a boyfriend. You'd never know anything had been wrong with her.

Hopefully, someone more knowledgeable will come along, but I thought this might help.

I know this was a few years ago but would love to know how your ds is doing? Going through this exact same thing with my 10 month old since she was 4 months old and find it hard to find anything