I was diagnosed with Epilepsy and Chronic Migraine a few years back. I had epilepsy as a child, I had the grande mal seizures then (called tonic clonic now) but now I have complex partial seizures,
touch wood I haven't had one of the larger ones.
Alongside this (not sure if its connected to the epilepsy,migraines, medication or if its something else entirely)I have constant pins and needles,fingers and toes (started this year), numbness down one side of my face, occasional loss of balance for no reason, and my speech goes I can be in the middle of talking to someone and my words either get all jumbled up or are not even proper words (this also started this year)
I see the neurologist once a year and I saw him today. I had a lot of things I wanted to ask him, especially about my speech
going funny and the constant pins and needles, and that I'm exhausted all the time my memory is awful I forget things constantly, even small things like things for school for the children, I have to write everything down.
I literally spoke to him for a few seconds, he hardly listened to me and then spoke over my head to my husband and asked him about stress.
They then both had a conversation about me being stressed (I don't feel stressed, we have a child with disabilities, he has autism and learning difficulties but he is mostly well behaved, he does have meltdowns but they are not too hard to manage, he doesn't attack people or throw things. He is in a lovely school and I'm not worried about him) other then that I don't think I have anymore stress then anyone else, I certainly don't feel stressed.
I tried to say this, I could hardly get a word in edgeways and they have both decided that its all psychological, the seizures, everything. Cognitive Therapy will sort it all out. The Neuro also actually said
to me that its better to speak to the spouse then the patient.
I'll go to this blimmin cognitive therapy just to prove its not stress
but I'm sooo mad with my husband and currently sat upstaires on laptop because I don't want to see him (not saying DH because he's pissed me off)