Endometriosis - Need Cheering Up

[Moneypennygb]

Following cronic period pains, I had a laparoscopy/hysteroscopy and something where they flushed dye though my tubes in February. I was back at the hospital today for a follow-up appointment and have confirmation that I have endometriosis on my ovaries. I've had a jab in the bum (lovely) with a medication called Decapeptyl and have to have another dose in three months. I've been told this will shut down my ovaries for six months in which time the endometriosis will either shrink or disappear. Apparently next cycle will be a killer but it should ease off after that and my body will think I'm going through the menopause too so hot flushes irritabilities, weight gain etc .... Can someone please please tell me they've come out a human being at the end of all this. . . .

(((hugs)))
I was diagnosed with Endometriosis following a laparoscopoy when i was about 19/20 after years of heavy bleeding and excruciating pain.I was given hormone tablets,the name of which escapes me but i remember putting lots of weight on,then i went on the pill(microgynon)for about 2 years solid without a break each month.
This seemed to do the trick and touch wood since then my periods have been ok and i have had my 2 dd's.
I can still remember the sheer agony each month ,i would roll into a ball crying with the pain it was so bad,the gp was called out a few times.The pain would run right down my legs from my ovaries and i would shake and feel sick.
I really hope that the treatment helps you.
xxxx

I have endo and its a real shit of a disease to be diagnosed with. You have my symapthies; I would also think it has taken you years to get diagnosed with this properly.

A website that I would strongly suggest you visit would be the one from Endometriosis UK. Infact any woman with endo should see this website. Its www.endo.org.uk. They have a lively message board and a helpline number you can call.

What is decapeptyl - does it have another name?. I would say such treatment may or may not work. You need to educate yourself more re endo and thus be in a better position to educate yourself re treatment decisions.

My guess for what its worth is that the lap was purely only used as a diagnostic procedure but it should also be used as a treatment as well.

I was diagnosed after a laparoscopy 5yrs ago when I was 17. They told me I was not a candidate for surgery and there wasnt really anything they could do! they told me the only possible 'cure' I had was to get pregnant which I had a 10% chance in doing but they would advise against it bacause one of my ovaries was atatched to my abdominal wall with endomatrial tissue. I was then signed off and sent home.
as you can imagine i was not best pleased, but this does have a happy ending you will be pleased to know. I fell pregnant at 20 and now have a lovely son, and seem to be free of that horrible stuff that plagued me.
So all I am trying to say is I thought my world had ended when the consultant said them dreaded words and I came through the other end.
I am so happy you are getting treatment, I hope it all goes well.

Keep smiling

Jodie x

Thanks all for taking the time to put fingers to keyboard, I will certainly check out the endo website details.

Been diagnosed with Abdominal Wall Endometriosis today - has anyone had surgery for this?