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Question about MRI scan, maybe MS related

33 replies

faitch · 05/11/2017 23:12

Hello, just after a bit of knowledge please.

Quick overview on situ; a few weeks ago I developed pins and needles in my feet, which spread upwards, resulting in extreme numbness in feet and lower legs, saddle anesthesia, reduced sensation (couldn’t differentiate between hot and cold water on feet) and a feeling in my feet like my toes were curling in under. Feet/legs felt like electric current were running through them constantly.

GP Immediately referred me to hospital, saw Duty Orthopaedic who done pin prick tests etc, and referred for a scan, as believed it was herniated disc.
MRI scan of lower back completed, nothing found, disc problems/Cauda Equine Syndrome ruled out, however the orthopaedic GP was very concerned, and banded MS about in the conversation, more than once. I wax then referred for an urgent MRI scan to brain/neck and also a defused weighted brain scan completed. Awaiting results.

The total numbness has now reduced in the feet and legs, however I still have a constant tingling feeling on the soles of both feet, ‘electric shock’ sensation shooting up my legs, and pins and needles after I walk a distance/run up the stairs/drive. If I tap my legs, the feeling intensifies.

Has anyone else ever experienced this, and could this be a symptom of MS? The fact that the Orthopaedic GP was so concerned and flagged my case as urgent has got me a bit nervous!

Just someone to discuss this with would be good, if possible. Thanks.

OP posts:
lyrebird1 · 13/11/2017 19:49

Sorry to hear that. I have a different spinal cord condition, but the Brain and Spine Foundation are really good for information. They also have a helpline where you can speak to a neuro nurse. They can help with decisions/medical jargon etc - basically almost anything you need help with.

Flopsbiggestfan · 13/11/2017 19:55

Hello! Hope you are doing ok? A lot to take in I’m sure. I don’t know anything about TM, I’m afraid. My MS started with optic neuritis and I was diagnosed about a year after that in 2015. Since then I’ve been on the DMD Tecfidera and have been really well fortunately. I would recommend the MS Trust website. There is lots of usual information about MS and I found it very helpful when deciding on a treatment especially. It is presented in a very positive way, which is what I needed at the time. Wishing you all the best. Xx

nancy75 · 13/11/2017 20:37

Hi Faitch, as I mentioned I have TM. I haven’t had any treatment as such, it’s just monitored by a neurologist. Because mine is a mild case I don’t know anything about aftercare - the only thing I have really found is a Facebook group that seems to have lots of knowledgeable people who have the condition (there seems to be a broad spectrum, from people like me that are hardly affected to people that are unable to walk) the group is called Tranverse Myelitus society.

nancy75 · 13/11/2017 20:39

From my own experience I hope it reassures you thatvafter the initial event I have been pretty much fine. Feet/legs feel a bit weird & I have occasional tiredness (beyond the norm) other than that life is pretty much normal.

Sallychamp · 14/11/2017 07:11

I've declined interferon as side effects would be worse than condition. Don't feel rushed/pressurised into anything.

MSLehrerin · 14/11/2017 11:33

I’m the same with DMDs - think carefully as PP says, sometimes side effects worse than MS symptoms

dysongirl · 14/11/2017 17:46

Hi so you were officially diagnosed with M.S.?
Sorry to hear that but if you want to pm me you can.
I have it since 2003.
I am on my third med and still look normal,the joys of an invisable illness. :D

dysongirl · 18/11/2017 14:57

Hi I started off on Rebif 44 injections for 3 times weekly
Worked great for 9 yrs until i noticed my leg dragging so further tests confirmed i had developted anti-bodies to all the interferons.
I then went onto Copaxone daily
But i was sick of the injection site reactions so i stopped it
I am now on a tablet Fingolimod (Gilenya)
I find it easier than injecting :D

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