Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

hypospadias op - advice please?

15 replies

fearscape · 13/04/2007 10:11

Hi,

Ds is now 8 months old and was diagnosed with mild hypospadias at birth. We decided it was probably best to get him operated on and were told that it would be a very minor operation - I admit I hadn't really given any thought to catheterisation, general anaesthetic, recovery etc. Yesterday we had our first appointment with the consultant and I'm now feeling traumatised! It doesn't help that he (ds not surgeon) was six weeks premature and was pretty ill in hospital for seven weeks, I have pushed it all to the back of my mind but talking about the operation brought it all flooding back and has made me feel quite sick. Went to look on the internet for more info and it all seems to be about complications and disasters. Am now panicking that we are doing the wrong thing, especially as it is mild and would only affect his ability to stand up to pee. I would really appreciate hearing from anyone who has been through it and can tell me how it went or offer any advice.hat it would be a very minor operation - I admit I hadn't really given any thought to catheterisation, general anaesthetic, recovery etc. Yesterday we had our first appointment with the consultant and I'm now feeling traumatised! It doesn't help that he (ds not surgeon) was six weeks premature and was pretty ill in hospital for seven weeks, I have pushed it all to the back of my mind but talking about the operation brought it all flooding back and has made me feel quite sick. Went to look on the internet for more info and it all seems to be about complications and disasters. Am now panicking that we are doing the wrong thing, especially as it is mild and would only affect his ability to stand up to pee. I would really appreciate hearing from anyone who has been through it and can tell me how it went or offer any advice.

OP posts:
fearscape · 13/04/2007 10:13

Whoops sorry for duplication of message - first one I've ever posted - am obviously incompetant with a computer!

OP posts:
jo25 · 13/04/2007 11:01

hello,

am fairly new to MN, but ds 4.6 hasa just had his first stage repair of hypospadias. It sounds like his is much more serious than your sons, he has previously had three other ops and has another 1 possibly 2 to go. He was absolutelty fine all thimes (his first was at 3months) I do not know what hospital you are under but they should have play specialists there and my advice would be to use these to the max. As far as GA are concerned i always avoided taking my ds as i had horrible images about it, however i was forced to go with him this time (had to have 2 ga and no dh on second one) It was absolutely fine. They just hold a mask over lo face until they fall asleep with you cuddling them. My last poece of advice is to be honest about your worries to everybody and dont feel intimidated by nursing staff. In my opinion they are great if they have all the facts. My ds came home two weeks ago and its like nothing ever happened to him. He dealt fine with the catheter which he had to have for 7 days, in fact he was sad to see it go! Everything will be fine i am sure, we have a saying in our house Positive thoughts create positive results!
good luck anymore questions just ask and sorry for the long ramble. hope it helps.

jo25 · 13/04/2007 11:16

Hello,
sorry forgot a couple of things, our ds eventually worked out a way to pee whilst standing, (his hole is on his body, although he has correct genitals;sorry for the basic language!) what we did find though that he was in nappies alot longer he was almost 3.6 beford being dry during the day and 4 when dry at night. It is quite comical to watch him standing to pee and he his friends at nursery think he is super cool as he has taught them how to pee like fire hoses!! hope this helps you in making your decision. sorry about another long thread!

JonesTheSteam · 13/04/2007 11:38

My DS (3.7) had this op when he was 13 months old.

His hypospadias was considered mild to moderate. They estimated that the operation was to be about 2 and a half hours (in fact it ended up being 3 and a half as the hypospadias was much more severe when they started repairing it). As a result of it being more severe he had to have a catheter directly into his bladder and he dealt with it fine. I was more stressed about it TBH - kept worrying that it would get tangled up. He stayed in for 7 days initially (DD was only 3 and I had visions of her pulling the catheter out).

The G & A thing was fine. I cuddled him until he fell asleep basically. He did struggle slightly but that's normal. And when he woke up, he woke up completely happy and smiley, and charmed all the nurses in recovery. I think it was q. good that he was only 13 months when he had it done as well, as he wasn't really aware that there was anything unusual going on.)

After 7 days they removed all the bandaging. He then had to stay in until weed to the surgeon's satisfaction. This was more traumatic as he was definitely holding back because it was painful. And he got upset every time he weed. We ended up staying in another 2 nights until they were satisfied that he was weeing ok and emptying his bladder. It still hurt for a while when we came home then all of a sudden it was as if it had never happened.

He is probably going to have another op at some point to make it cosmetically look better.

He was out of nappies at 3.2 and dry at night almost immediately - he was younger than my DD when he was out of nappies. His hole is now at the end of his penis, and he can wee standing up (though at the moment he's a bit too short so prefers to do it sitting down anyway.

Can I ask where you are? My DS had his op at the University Hospital in Cardiff. I think we were quite lucky as the waiting time halved after we put his name down as a new surgeon came.

fearscape · 13/04/2007 14:35

Thanks so much for your replies, you have made me feel better especially about the ga - i was imagining they'd take him away when he was still awake. We're near Oxford so he's having it done at the John Radcliffe. They've just had a new children's hospital built and I know they have play specialists so hopefully it's a good place to be. I just have to keep remminding myself that it won't be like when he was in special care - I felt so out of control and being a new mum I had no confidence in looking after him or talking to the nurses, which is really affecting how I feel about him going back into hospital, but this time I think I'll be much more assertive! The surgeon said he would book ds in for September and didn't mention waiting lists so we may have struck lucky there. Is there anything you can do to help with the painful urination afterwards? do they get sent home with painkillers or anything? Thanks again and glad to hear your boys are doing so well.

OP posts:
JonesTheSteam · 13/04/2007 14:57

He had ibuprofen and calpol at the hospital, so we just continued giving that for a few days.

(Meant GA (General Anaesthetic) in my earlier post not G & A - sorry)

JonesTheSteam · 13/04/2007 14:57

We also had some cream to put on his bits to help him heal quickly - bizarrely it was the cream they give you for conjunctivitis!!

jo25 · 13/04/2007 15:41

We also had the eye oniment and the only other pain killer he had was v occassional calpol and nurofen.

jo25 · 13/04/2007 16:17

encourage him to drink lots more than normal. this should help with relieving the pain on urination. If he wont drink a good way i have found with my ds post op is to use jelly or make ice cubes out of his favourite juice or whatever he drinks. You have to forget about healthy options for a week or two and just give him what he wants. after all its only two weeks out of the rest of his life.

howdoo · 13/04/2007 21:10

My DS had this operation last November - like you it was mild hypospadias, but I am really glad we went ahead. DS was in for three nights and was fine for most of it - a bit out of it for the day after the operation but not upset IYSWIM. The GA is fine - they let you go down with them and hold them while they anaesthetise them. He had a catheter for a week. The worst bits for us were 1. when he started bleeding a few days after the op and we had to go back in for a night - all was fine but he was very cross when they tried to give him antibiotics! and 2. when they take the dressing off/catheter out, they put him in a bath for about half an hour beforehand so that the dressing becomes softer and easier to get off - he got quite distressed in the bath.
Personally I think it's really important to get it done - you don't want him to go through life being different and not being able to pee standing up. It seems an almost cosmetic operation in a way but I think it's vital to a man/boy's confidence, both sexual and general.
He will be fine - it's an increasingly common operation and they know what they are doing - easy to say, but please try not to worry too much!

bamboo · 13/04/2007 22:35

My ds had his op about a month ago when he was aged 18 months. His was a fairly mild case too apparently though at no time was I given the impression that not operating was an option.

He was nil by mouth from 3am with a view to going down to theatre at 9am (I think they try to do the younger ones first.) As it turned out they didn't take him down until 1pm so that was a pain but he was fairly happy playing in the dayroom. He must have been starving though, bless him, because he tried to eat the glue on the sticking table - it was in a yoghurt pot .

I did worry about the general anaesthetic and stuff, it's just the unknown isn't it? He was prepped for theatre first thing with a canula in each hand. dh took him down to be anaethetised (they only let one of us go and I thought he would handle it better than me). They did it with a tube rather than a mask I think. Apparently he did struggle but dh held him and sang to him until he went to asleep. Anyway he was down for about 3-4 hours - like JonesTheSteam ds, it was more complex that they thought in the end. dh collected him and I was able to breastfeed him. He was quite pale and drawn but soon revived. Then he had a banana - probably not a good idea as he chucked up a few times. We stayed in overnight - quite an unsettled night as the nurse wanted to check his catheter every couple of hours to make sure it was draining as he didn't seem to be peeing much. It was fine. He was discharged late the following afternoon. We were shown how to deal with his catheter - you basically have two nappies and the catheter just drains into the outer nappy with the inner nappy only needing to be changed if he poos. He was so well bandaged you couldn't see anything.

In the morning he was playing quite happily, by the afternoon at home he was running round like nothing had happened. Amazing really, how they bounce back. I'm sure if dh had been messed around with down there he'd be moaning for weeks! He had a few spasms in the first 48 hours where the body tries to reject the catheter but you get medication to deal with this. We were also sent home with antibiotics to ward off any infection and an ibuprofen. Also a laxative which we didn't need to give him as it happened.

The bandage didn't seem to bother him one bit. I thought he'd be grabbing at the catheter at every nappy change but it was relatively easy.

A nurse came to the house ten days later to remove the catheter. That was quite upsetting for him though I was amazed when the bandages came off there wasn't any bruising - it was just very very swollen. It's still swollen now and I expect it to be for a while yet. We see the consultant in September to assess things and see whether or not he'll need a follow up. I really hope not as he'll be that bit older and it'll be hard to explain to him.

The whole experience was honestly not half as bad as I'd feared. He coped with it all brilliantly. His penis always used to look quite sore and he was prone to infections prior to the op but there has been none of that since.

As howdoo said I think it is an important thing for a man, although they did refer to ds's operation as "cosmetic". The surgeon said it took longer than expected as there was a severe bend to ds's willy. If it had gone uncorrected I'm imagining that could have caused issues with sex and ejaculation, as well as simply not being able to pee properly. I wouldn't have wanted that for him.

As an aside, my brother had this condition and had two ops as a toddler. He's had absolutely no problems since.

Blimey, sorry for the epic! I did the same thing as you - researched the internet, joined some bizarre Yahoo group full of alarming stories, and got quite scared, before posting here. There were lots of reassuring messages from people. I hope you feel reassured too. Good luck .

fearscape · 15/04/2007 11:27

Thanks for all your replies, I am definitely feeling more reassured. Like you say, I think it would have a big effect on him growing up so that's why we decided to go for the surgery. Bamboo, your poor ds trying to eat the glue! am definitely not looking forward to having to starve ds but at least he will be pretty distractable by that age I guess. Did you wake him up at 3am to feed him? Also, can I ask whether you found the breastfeeding helpful for comforting etc? I currently bf just morning and night (going back to work soon, rest is formula) and was planning on giving up at 1 year but ds will need 2 ops at 12 and 18 months so am wondering whether to carry on (unless he self-weans) to give an extra way of comforting him after the ops - does it still help at that age?

OP posts:
howdoo · 15/04/2007 20:26

Ooh, Bamboo's message has reminded me of something else - the bandage gets absolutely covered in poo really quickly. I was worried that it would be unhygienic or the nurses would retch when they saw it or something! But they told me that all of them come back completely soaked in sh*t. Something else to not worry about if/when it happens! Sorry if TMI!

fearscape · 16/04/2007 08:18

Lovely! Thanks for the warning!

OP posts:
bamboo · 16/04/2007 21:29

Fearscape, I did feed him just before 3am. Breastfeeding was definitely a comfort to him immediately after the op and during the night we spent at the hospital. Other than that it was business as usual - I thought he may need it more during his recovery which is why I wanted to keep breastfeeding but, as I said, he was back to his normal self after a day or so.

New posts on this thread. Refresh page