Hi, just looking for experiences really.
I was diagnosed with Graves’ disease back in May this year, but I was pretty symptomatic for about 18 months before that, but wrote it off to stress (hand tremor, weight loss, sweating, high heart rate etc). I started on a low dose of carbimazole but my levels kept fluctuating and landed me in a&e a couple of times. So now I’m on a much higher dose of carbimazole and I feel awful!! I’m bed bound. The endo thinks thyroid surgery would be a good plan (I have 3 kids and live overseas from family support so radiotherapy isn’t ideal). I’m not too worried about the actual surgery, I just don’t want to feel terrible for ages after and struggle to get the thyroid replacement right. I’m starting a new job in January and it’s going to be taxing, I don’t want to be dealing with palpitations, low calcium etc.
Any stories or advice greatly appreciated. I’m seeing the ENT surgeon this week!