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Longterm endo sufferers who've tried everything - help!

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TammySwansonTwo · 27/09/2017 12:17

Today I'm having to see a gynae at my local hospital. I was diagnosed with endometriosis 13 years ago, have had six surgeries, mostly with specialists at a regional referral centre. All my experiences of gynae at my local hospital have ranged from poor to extremely traumatic. I wouldn't let them operate on me again if they were the last surgeons on earth. They lack basic understanding of the illness despite the fact they are apparently now a recognised endo centre.

If it were up to me I wouldn't be going. However, my GP has been giving me a hard time about being on "so much morphine" (it is still a relatively high dose but over the last few years I've reduced my dose by 90% with no help) and she said she wants me to be seen "in case there's some new miracle treatment". Major eye roll.

It's a waste of their time and mine but I fear what will happen if I don't go. I honestly don't know what to say to this guy - I don't want him to operate, I don't want any treatment other than the pill as I can't take the side effects, and there's no point me going through the local pain clinic again as they're even more clueless.

I think I just need to discuss my current situation and ask what they think my options are and see what they say. Unfortunately I lose all my confidence when I get in front of a doctor and really struggle to assert myself.

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