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My smear came back with severe dyskaryosis. I am so scared

14 replies

user1497207858 · 19/09/2017 17:25

Got the letter today after 4 weeks. I am so so scared. The appointment for my next test has been booked for Thursday. Has anyone else had this I really need some reassurance

OP posts:
WhatWouldLeslieKnopeDo · 20/09/2017 22:26

I don’t know anything about this, but didn’t like to see your thread with no replies. Hopefully someone with some experience will spot it in Active if I give it a little bump :)

Good luck tomorrow. I hope you get the best possible results Flowers

PanannyPanoo · 20/09/2017 22:54

I have replied twice in great detail and lost it when I pressed post
I have had 8 treatments for cin3/cancer in situ. Most women only need one. I am an attention seeker!

I imagine you be having a colposcopy. Which is like an in-depth smear. I used to wear a long full skirt so I Could just take my knickers off rather than wander across the room naked from waist down
I sat in a dentist type chair with leg bits that move.
I had a tiny camera put inside and could see my enormous cervix on the screen.
Dont watch the treatment
I had a substance put on it that turned the dodgy cells white

PanannyPanoo · 20/09/2017 22:59

Then they were removed.There are a number of options for removal. I think I have had them all. Most feel a bit crampy and sore. I spent the following day on the sofa. I had a physical, emotional job though. if I had a more sedate job I could have gone in after some of the treatments
I have had 75% of my cervix removed and have since had 2 full term pregnancies.
I am often told during smears that I have a neat cervix!
I had 6 monthly then yearly check ups for a few years.
Please ask if you have any questions.
it is a scary time. but really isn't all that bad at all. best of luck tomorrow.

LordEmsworth · 20/09/2017 23:12

I have had that diagnosis, and was terrified, but honestly - I am so blase about it now!

I had the colposcopy where they use a microscope to look at your cervix, and they could tell I would nèed a biopsy so they did that there and then. Got called back for a loop excision, where they cut the cells out. Then a couple of follow up colposcopies and then the all clear.

All the medical staff were very friendly but also pragmatic and down to earth. The indignity is definitely the worst bit of it.

The fact it's been diagnosed now means treatment is quick and easy, and that will prevent it getting worse. It's a good thing that you know this (honest)

user1497207858 · 21/09/2017 10:58

Thank you I really appreciate your replies. I have my colposcopy today and I'm really scared at what they might say. Fingers crossed everything is okay

OP posts:
user1497207858 · 21/09/2017 17:19

Thought I'd update you. They did the LLETZ there and then today. Really wasn't bad at all, I would say having a filling is worse. They said it was severe but it's been removed. They will send it off for testing and let me know in 6 weeks. Fingers crossed

OP posts:
WhatWouldLeslieKnopeDo · 21/09/2017 17:29

I’m glad it wasn’t too bad Flowers fingers crossed for your results

PanannyPanoo · 21/09/2017 17:51

So glad its all out of the way. take it easy this evening and tomorrow. chocs, wine and a film! x

ACubed · 21/09/2017 19:08

I have just had a letter saying the same thing, awaiting appointment! I had one evening of being a bit teary but having researched it I feel much better - it's so great that we are screened for this and it prevents so much cancer! Anything that involves getting a leaflet through the door with the C word in it is terrifying though. Good luck with the results

LuluJakey1 · 21/09/2017 19:34

Please don't be scared. It happened to me and the letter is not reassuring- made worse because where I live the colposcopy is done at the regional gynacological oncology centre. I spoke to the nurse at the clinic by phone I was in such a state. She said smears pick up cells that have changed and may possibly become cancerous at some point in the future. She said in mild dyskariosis they might just leave them alone and keep an eye on them and quite often they just go back to normal but in severe it means there are more with more changes so they ususally just remove them and the problem is gone. She told me to stop worrying.
The colposcopy was like a smear. You could watch it on the screen if you wanted to- I didn't. They squirt the cells with a vinegar solution which makes them show, look at them with a high powered microscope them give you a local anaesthetic(never felt it) and remove them with a loop of wire. They also did punch biopsies- little clips of cells to be on the safe side.
It was mentally more traumatic than physically because I am so anxious over things like this. DH came and watched on the screen- said it was interesting 🙄
I had no bleeding and took a paracetemol incase of pain but didn't need it.
I had to have it done again under GA because some of the cells were round the edge of the cervix and they missed them. It was 8 years ago and I haven't had a problem since - had yearly smears.
Stop worrying. Your smear test has done what it was intended to do. My colposcopy was done by the most senior Dr who led the whole oncology centre - lucky me, he was wonderful- and he said if they did not treat any cases of dyskariotic cells at whatever stage, in most cases they would revert to normal. They remove them to be on the safe side because they don't know whose would be the ones that would eventually become cancerous over time.
You will be fine.🙂

LuluJakey1 · 21/09/2017 19:35

Sorry, have just realised you have already been. Duh! Sorry. Glad it went well.

OffcialMalbecTaster · 21/09/2017 20:33

Glad it hear it was good for you OP. Im having lletz done under GA next week. Is it quite quick to be done? Im having it this way so they can remove & replace my coil to allow them to do the treatment. Also is there much pain afterwards?

user1497207858 · 22/09/2017 07:09

I'm holding out for my results now. If I'm honest I wish I hadn't read so much online beforehand because that's all I keep thinking about, not the stuff the doctor and nurses told me which is really stupid. The doctor and nurses were so biased about it, looking at me like I was being over dramatic haha but not in a nasty way. The doctor explained that yes the cells are severe but she said they could take 10 years to develop into cancer but this is why we have our smears to ensure we pick things up early. I waited over 3 years to get my second one done and it's really kicked me up the arse to ensure I have them when I've been told to have them!

OP posts:
WhatWouldLeslieKnopeDo · 22/09/2017 08:13

user I don’t know anything much about cervical cancer, but I’ve got bowel cancer. We have a rule over on the cancer support thread of no Googling! A lot of the information on the internet will be out of date, and it’s all very general. Whereas the doctor and nurse know your individual case. Medical people are careful not to give false hope, so you can trust what they are saying. That doesn’t mean you aren’t allowed to worry, of course you will until you have those results Flowers

You’re welcome to join us over on the cancer support thread if that would be helpful. Some people join us while they are waiting for results, whereas others understandably don’t want to be on a thread about cancer.

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