Chronic Fatigue??? Where to start?

[MOIST]

GP suspects DD has something along the lines of chronic fatigue.
She's 19 and has Aspergers. We're used to her normal levels of anxiety and general autisticness. But since spring she's been very different.
Having had a bit of a google it fits to a point.

What next? Where do I start looking into how to help?
TIA.

Has she had blood tests? DD had chronic fatigue, we thought it could be glandular fever but was a strep infection.
If she's had tests I'd ask for a referral to a rheumatologist, lots of auto immune diseases have fatigue as a major sympton.

Ferritin was borderline but HB normal. No sign of infection. Thyroid normal.
GP we saw was a locum (sadly as much more thorough than our usual). and is going to ponder and get back to us.

Sadly chronic fatigue is something that can take a very long time to diagnose. Mine took close to 10 years as no doctors took me seriously.
They will do blood tests for everything to rule out that it could be anything else.
Sorry to hear you daughter feels so fatigued...it's a horrible and sometimes unexplainable and guilty feeling illness to live with.
Doctors will suggest gentle exercise and pacing which really does help but you have to make sure you don't overdo it. Which is very hard if you are used to having an active life to make the change. They will also more than likely offer CBT which helped me with my way of thinking after my diagnoses. It really can be life changing.
I find for me diet helps too- not too many carbs like bread and pasta that make me feel slow and sluggish.
As a family as I'm sure you are very supportive and understanding but what I did is buy my family and boyfriend of the time a book about M.E for greater understanding. It also helped me to read them now and then without feeling the guilty burden of having an invisible illness and people not understanding me.
All I can suggest is your daughter takes time to look after herself, relax and sleep when she needs to and listen to her body. I hope this helps in some way x

Oh and please keep pushing for diagnoses. Mine got confused with being a coeliac, virus, low iron and depression before it was found I did in fact have M.E
Make sure you have a doctor who is understanding of the illness.
Best of luck

I have had two friends whose children have been diagnosed with CFS. Both have found The Lightening Process to be transformational. I don't know much about it, other than it's not cheap, and you have to implement it once you have been on the course, not just pay lip service, but both had children who had been out of school/not participating in life for over 6 months and who are now back to full strength and well.....may be worth a look.