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Awful periods - should I get a second opinion?

36 replies

BingumyThob · 26/08/2017 18:15

I've always had bad periods but recently they seem to be getting worse. I went to the GP about it and she was really rude and dismissive to me and now I'm terrified to mention it to anyone else as I fear I would be wasting their time. Just wondered if anyone can relate to having periods like this? What would you do if you were in my situation?

Sorry if this gets a bit long, but so as not to drip feed, here is my history:

As a teenager my periods were relatively long (7-10 days on average), sort of irregular (cycle usually between 25-35 days) and quite painful. I had one random period that lasted about 3 months, was referred for an ultrasound but nothing came up. I then went on the progesterone-only pill and periods stopped altogether.

Jump forward about 5 years and I came off the pill to TTC and got pregnant almost straight away. Pregnancy was ectopic and ended up having an emergency salpingectomy due to a ruptured Fallopian tube.
After the surgery periods were similar to before, with a few extra sharp pains on the side where my tube was removed, and also some pain between periods.

I then got pregnant again about 5 months post-op. DD is now 17 months old.

After DD was born I bled for about 10 weeks, had 2 weeks break and then got my first period (felt very shortchanged by this as was exclusively breastfeeding and expected a break!). Periods have come like clockwork every 28 days ever since.

My periods now last for at least 10 days, often 14. The first 7 days are extremely painful and very heavy. I have started getting pains in my legs for the first few days, and a weird throbbing in my vulva which is excruciating - it feels a bit like there is a massive weight hanging from my labia. I have mentioned this to a few people and have yet to speak to anyone who has experienced this. I have also been getting some spotting and cramps between periods.

I went to the GP about it and she took some swabs, which came back normal. I then went again and had to beg her to refer me for an ultrasound. The sonographer literally scanned me for about 2-3 minutes transabdominally, told me everything was normal, and sent me on my way. I went back to the GP and she told me that there was no need to refer me to a specialist for further investigations, that my cycles must just be "normal for me", and that I'd better just "learn to live in pain" because they will probably always be like that until I hit menopause (I'm only 25 now!). She also said that I probably have adhesions left over from my ectopic pregnancy and that they may go away but will probably cause me pain for the rest of my life. She implied that I was wasting NHS time and resources and I left the surgery in tears.

I feel like I should get a second opinion. I'm sure my periods are not normal, and I think there must be more investigations that could be done. I'm finding it really hard to cope. I spend half the month in agony and the other half dreading the next period. The blood loss makes me weak and exhausted. The thought of coping with this for the next 30-odd years until I go through the menopause is seriously getting me down. But I'm embarrassed and scared of being made to feel like a time-waster again. WWYD?

OP posts:
BingumyThob · 31/08/2017 12:55

Thanks Polly. I have just sent an email - good idea, much better than me getting all anxious and mincing my words on the phone!

OP posts:
BingumyThob · 31/08/2017 13:01

Wow - I got a reply already! Appointment a week tomorrow. Thanks again all of you for taking the time to share your experiences and advice. I wouldn't have had the confidence to make this appointment if I hadn't posted on here.

OP posts:
AttilaTheMeerkat · 31/08/2017 16:03

Great news indeed re an appointment next week.

Some suggestions for you:-

Write down any questions that you want to ask this question, no question is daft.

Such appointments can be nerve wracking; if at all possible do not go on your own. Moral support provided by your man can be invaluable.

Do take your pain and symptom diary with you if you have this or have kept one to date; this will also give that person clues.

Do let us know how you get on and best of luck for next week.

Halsall · 02/09/2017 10:54

Well done, Bingumy. Completely agree with everything Attila said (as I usually do Grin).

It may also be possible to have an initial consultation privately and then transfer back to NHS care with the consultant. I did this for some of my treatment so I know it can be done. It's worth asking.

Please keep us updated on how it goes. Best of luck.

lozzylizzy · 02/09/2017 23:19

I have been going to my GP since my little one was around 1 year old. I moved house, changed GP practice and they took me seriously and referred me on to gynae! Turns out my haemoglobin was 6 which is bad in itself without the underlying cause!

Ask for a different GP, try again with someone else. Good luck!

stopfuckingshoutingatme · 03/09/2017 08:00

That's not right
At least they should have a look at the womb and consider some medication to help with them

I would write down your feedback Ina very concise 5 bullet format and make an appointment to see someone else

Also do Some research yourself in an in scary website

I hate shitty GPS like this they do so
Much damage Angry

stopfuckingshoutingatme · 03/09/2017 08:01

In a not scary website I research in here ,NHS and mayo clinic etc !

BingumyThob · 05/09/2017 09:14

Thanks again for all the advice and support. Getting quite nervous about the appointment on Friday now.

I will sit down and make some notes on what I want to say, that's a really good idea. I know I will probably end up getting home and thinking of 10 things I didn't tell her or questions I didn't ask otherwise.

I think I will have to go alone as my husband will need to look after our little girl.

OP posts:
Easilyflattered · 05/09/2017 09:33

OP I have a very similar menstrual history to you, including the achey vulva and legs. Apparently pregnancy can cause varicose veins in your vulva and I've wondered if this explains the fanny ache when standing up.

I had a laparoscopy, hysteroscopy, and DC, but only because I had bleeding at completely random times, and they did remove some endometrial polyps.

I still have rubbish periods although find the painkiller naproxen helps a lot. I hope you get some answers, some doctors are much more helpful than others. I have had doctors say to me that if I conceived children there can't be that much wrong with me, and also that periods do tend to get worse as you head towards the menopause. I think they thought their comments would be a comfort.

BingumyThob · 07/09/2017 17:58

Thanks Easily
Sorry that you have had to go through similar and are still suffering. Good that you've found something that helps though.

I'd never heard of varicose veins in your vulva!

My gynae appointment is tomorrow and I'm getting quite nervous now. Even though I know really I have every right to be seen by a gynaecologist, I'm still getting all panicky at the thought of another medical professional treating me like I'm wasting their time because I can't deal with something that a stronger woman would just be able to brush off.

OP posts:
BingumyThob · 08/09/2017 21:55

So, for those of you who asked me to keep you updated, I had my appointment today.

They did another ultrasound (with the dildo-cam this time, and for more than 2 minutes, so quite a bit more detailed!). They found polyps in my uterus and also a mass in the area where my Fallopian tube used to be. The latter could be adhesions but the consultant thought it looked like something else (she was a bit vague on this but mentioned a few things, including endometriosis ).

The sonographer also mentioned adenomyosis because my uterine lining was measuring much thicker than it should have been, and I had increased blood flow in the uterus generally, however the consultant seemed to think this was due to the polyps.

Anyway, I'm now feeling kind of confused and wish I had asked more questions.

The conclusion was that the consultant wants to do a laparoscopy to remove the polyps and the unidentified mass and get a better look at what's going on in there. They said I could have this done on the NHS, but the waiting time is a year (Shock). So I am now trying to decide whether I can justify paying the extortionate price to have it done privately, or whether to just accept that I'm going to be in pain for another year.

I'm so glad I made the appointment. Thank you all so much for your advice and support on here, I honestly think I would have just continued to suffer in silence if it wasn't for you. It was so reassuring to be taken seriously by the consultant, I actually sat in my car and had a little cry afterwards.

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