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Really concerned about ovarian cancer

38 replies

Sun12 · 23/08/2017 11:20

Hi
I'm trying not to worry but I'm really concerned that I have ovarian cancer.
I have a little boy and I'm really worried.

I've had pressure in my lower area. Had a scan last year which revealed two tiny fibroids (no problem). Everything else was fine. Feels like a lot of gas.

Went to the doctors yesterday and a locum said given my history that it's highly likely that I have ovarian cancer. He didn't check my tummy or anything, just came out with it very blazee and finished off on a very worrying take care of yourself.

I'm trying so hard not to think about it but I'm really scared.
I've been sent for another scan (awaiting the letter). Plus had bloods today.

OP posts:
Sun12 · 23/08/2017 15:05

Thanks everyone.
Yes I'm definitely certain.

Anyway I appreciate everyone's feedback.
All the best.

OP posts:
PollyPerky · 23/08/2017 16:01

You need to report him to the practice manager and maybe even the Royal College of GPs.

No dr would come out with a statement saying it's highly likely a patient has cancer, without knowing the facts. If he did, he ought not to be working.

PollyPerky · 23/08/2017 16:05

OP why did you go to the GP anyway if 'all' you had was some wind after eating late on holiday?

Is there something else going on?

Did you go in saying to the dr you thought you had cancer?
Who brought it up first?

This doesn't sound credible to me , sorry.

teainbed · 23/08/2017 16:10

RCGP have no role in these circumstances.

Complaints go to practice, PALS, Ombudsman and GMC.

I still think it's a communication problem. Nobody can diagnose ovarian cancer with that information.

Dawnedlightly · 23/08/2017 16:47

Please call the practice and ask for a call back or review of your notes.

Belindaboom · 23/08/2017 17:45

How helpful polly

I hope it works out OP. Push for more information- bloods are helpful to diagnose only with scans as CA125 is not a definitive marker. (Unless a different rumour market which is unlikely in this case)

lovechocolate123 · 23/08/2017 21:10

Pollyperky- what adopt such a rude tone? I am sure the Op knows what she heard.

Ropsleybunny · 23/08/2017 21:17

You should be referred urgently, within two weeks, to an oncology/gynae clinic. They will do an ultra sound of your abdomen and inside your vagina. If you have anything suspicious on your ovaries this will show up.

The CA-125 should not be used to rule in or out a diagnosis of ovarian cancer.

I'm an ovarian cancer survivor, so I know the ropes. I also know that doctors aren't great at communicating. Mine broke the news that I had a 9cm x 6cm mass very casually, and as if I already knew.

PollyPerky · 23/08/2017 21:24

lovechocolate It doesn't sound credible that the doctor would have this conversation. The emphasis being on the dr. Just saying what plenty of other posters have said that maybe he used the wrong words or the OP misheard.

lovechocolate123 · 23/08/2017 21:36

Just think your comment was patronising and insensitive. Not referring to anyone else's comments.

Crumbs1 · 23/08/2017 21:38

It would be usual to refer under 2ww to either gynaecologist or direct referral hysteroscopy clinic if there were concerns indicative of ovarian cancer. The exact pathway would depend on commissioning but it certainly wouldn't be a GP saying ovarian cancer is highly likely and doing bloods.
cks.nice.org.uk/gynaecological-cancers-recognition-and-referral#!scenario Gives NICE guidance. If you meet criteria and pathways have not been followed go back and see a different GP ASAP.
One wonders what in your history makes it highly likely? Tamoxifen? Morbid obesity? Family history? High alcohol use? Really odd comment for them to make.

lovechocolate123 · 23/08/2017 21:39

Also, you need to think that people often post on here for reassurance not to be patronised by others.

Belindaboom · 25/08/2017 17:57

Any news OP?

Totally agree with love - the pp is certain that's what was said. It's not helpful to say "oh you misheard". Presumably there was an in depth conversation. Doctors don't always say the right thing (trust me).

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