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Terrible but unidentifiable pain

8 replies

BumbleNova · 21/08/2017 15:02

I've been really suffering for about months now and I'm slightly at my wits end. I thought I had UTI - I've been having terrible lower abdomen pain. But the urine tests have all come back clear. I've had four rounds of antibiotics which havent helped. I was carted off to A&E last week, I was in agony. It was very sharp on my right hand side, but we have ruled out appendix. its not obviously an ovarian cyst ( i had an ultrasound). it switched sides this week, i nearly passed out with pain. I cant really walk or stand, I've lost my appetite and I feel so sick.

I've managed to get a referral to a urogynaecologist and i'm having a laparascopy. Has anyone else been through this? I just want to go back to normal and have the pain stop??

OP posts:
Pannalash · 21/08/2017 18:54

I am currently suffering with kidney stones which are absolutely agonizing so do sympathise. Is there any possibility you may have kidney stones?

junebirthdaygirl · 21/08/2017 19:42

Gall stones? Though pain went up my back but it was agoy.

BumbleNova · 21/08/2017 22:07

Ooh I don't know? Did you have any symptoms other than pain?

OP posts:
EllenRipley · 22/08/2017 13:11

That sounds horrible, sorry to hear you're suffering. Have they mentioned endometriosis? I had laparoscopic surgery last year because I was told that's what I had (along with a cyst). No endo was found but I had extensive scar tissue from a previous c-section. Both endo and scar tissue can grow around organs and bowel and cause a lot of pain (tho sometimes none!). The surgery should give you some answers so hang in there. As someone else said, kidney stones can also cause a lot of pain. Fingers crossed you get some answers!

emsyj37 · 22/08/2017 13:21

I spent about 2 years suffering with agonising abdominal pain with no identified cause. I took medication for IBS which didnt help much and was regularly confined to bed curled up in the foetal position crying with the pain - much worse than anything Ive experienced in labour. Eventually I worked out that it was eating Quorn that caused it - I saw an article on the internet that described my symptoms and said Quorn can cause it. I stopped eating Quorn, the pain went away and I would never eat it again. This seems to be a fairly common side effect so just mentioning it in case you are a big Quorn eater!
My DBro has had gallstones and they are also agonising - his were tiny but he was doubled over in pain with them.

Hope you find the cause and a solution

BumbleNova · 22/08/2017 14:20

I think endometriosis is what the gynaecologist is thinking but I don't have bad periods at all. But that said I've not had periods for years, I've had the implant. It's slightly driving me crazy not knowing what the possible answers are?? But honestly at this point I just want my life back.

Interesting, but I've never eaten quorn. I can't stand it!

OP posts:
EllenRipley · 22/08/2017 23:11

From what I know (I'm obvs no expert!), you don't have to have periods for it to be 'active' but you will have active hormones that are imbalanced. Women with endo often have high levels of estrogen. Whatever they do or don't find, maybe consider coming off the implant and finding ways to normalise your hormones to see if that helps? If it is endo hopefully the surgeon will be able to remove as much as possible and there's an increasing amount of useful resources online about how to manage it, before and after surgery.

AttilaTheMeerkat · 23/08/2017 07:59

It could well be endometriosis and that is why the laparoscopy has been suggested. You can also have bladder involvement with endometriosis.

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