Shall i complain about my doctors. Kidney related

[LondonLassInTheCountry]

Long thread:
Sorry in advance.

I was diagnosed in December with Chronic Kidney disease, IGAn, FSGS and Nephrotic syndrome.

I have been getting infection after infection for years, literally, 14 years, always tired, and general feeling of illness.

Would go to the gp, they would often do blood tests and sometimes give antibiotics, always said blood tests were ok.

Well iv moved areas and changed doctors, on a new system online with my new surgery you can have a look at my medical notes. As far back as 15 years ago, ALL my bloods are clearly marked as Abnormal, not one of them is normal. Looking back as the years go by, My kidney function, crantine, and FGR (all kidney markers) have all got worse...
AIBU to think that if this was actually picked up on years ago, i could of been put on meficine and i would now be stable.

Im on disabliity benefit and unable to work. My kidneys have failed twice this year and iv been admitted into hospital 5 times.

I currently live my life one day at a time, as no two days are the same. I currently am unable to wear shoes some days because of the swelling.
My meds are always changing at the moment and im still unstable.

But if a doctor had actually looked more closly they could of seen ehat was happening and i could of been treated quicker.

My partner doesnt think i should complain as it will get me nowhere, but im angry

Sorry for long post

OP that's awful. Absolutely completely complain. But with advice, complain properly. I'm not a "claimer" and trusts are stretched but I would claim for this, if they've been negligent in your care, I would.
People don't realise how disruptive and serious kidney issues can be.

My dd has suffered infections for years now also - I don't think they are doing a fab job, however, she has had:
Antibiotics for each infection, found out by urine dip test
Yearly or twice-yearly scans to check position and scarring and growth
A dmsa scan to see function and damage
Very few blood tests actualy, possibly only 3 in 5 or so years.

After repeat infections were you not offered a scan to check for damage? And why all the blood tests in place of other tests to find out WHY the infections were repeating? What investigating was actually done?

My dd has a duplex kidney which they suspect to be the cause and are now investigating that further, finally. Do you know what caused your infections yet?

I would want to complain and find out why things were not investigated further, at a time when there was a chance to prevent further damage. Why they did not follow the next logical steps regarding your care.

That's really shit OP, I'm so sorry. What is your new gp doing for you at the moment?

I would absolutely complain. Had you known this, you may have made important life style changes or sought medical help for things such as stomach bugs...which chip away at kidney reserve.

I too have CKD, and will need a transplant in the next few years. Whilst I cannot prevent this, my hope is that every day I go with some remaining kidney function, is another day of medical research which will hopefully help when the time comes.

Are you on the transplant list? My mum had one and got her life back. There is hope for you so please don't lose heart for a brighter tomorrow.

Your kidney unit may offer counselling which might be useful to you, if not Kidney Care UK may be able to help.