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Raised bilirubin levels - what could this mean?

13 replies

Myrubbershoes · 10/07/2017 09:33

I had a Vit D deficiency earlier this year. Treated with strong supplements and now all OK. Had a blood test about a month ago to check levels, and they did a liver function test at the same time. My bilirubin level was 29, when should be under 20 apparently. They asked me to repeat test 4 weeks later, which was last week. Phoned for results today, bilirubin has gone up to 37 but doctor doesn't want to see me? Hmm Am not quite sure why they wabted to repeat the test if they don't want to act on it, but thats another story!

Does anyone have experience of raised bilirubin and what causes this? I've googled, and all it comes up with is jaundice, and I have no visible symptoms of this. All other liver function tests were fine. I'm getting a doctors appt to discuss, my my GP isn't free for 6 weeks so will be a while before I can discuss with her.

OP posts:
Pleasemrstweedie · 10/07/2017 09:48

Gilbert's Syndrome?

DividedKingdom · 10/07/2017 09:52

I second gilberts syndrome

Synecdoche · 10/07/2017 09:58

I have Gilbert's Syndrome and for me, in my GPs words, it is "nothing to get excited about". Can you give your surgery a ring and ask the doctor to call you back to put your mind at ease?

gobbin · 11/07/2017 18:55

I have Gilberts, bilirubin is usually around 69. Was discovered during routine Crohns bloods. No issues.

Aliveinwanderland · 11/07/2017 19:07

I have Gilbert's. My bilirubin is usually around 50 but has been as high as 130.

Myrubbershoes · 11/07/2017 20:17

Thanks all. I've googled Gilbert's, some of the other 'symptoms' fit. I'll try and get an earlier appt with the go to discuss. Good to see it's nothing to worry about though!

OP posts:
YoungGirlGrowingOld · 11/07/2017 20:25

It's Gilbert's - I also have it. Read something recently that says it's actually so common it's a variation of "normal" so not really worthy of being a syndrome. It has some health benefits iirc as well!

usernamesachangin · 11/07/2017 20:26

I don't want to freak you out but my FIL had pancreatic cancer and 1st sign was raised bilirubin as the cancer was putting pressure where it shouldn't. I'd ask for an ultrasound to be on safe side.

SueGeneris · 11/07/2017 20:36

Are you taking any vitamins or herbal remedies regularly? I am going through investigation for raised bilirubin levels but discovered that on the leaflet for feverfew, which I've been taking daily as a migraine preventative, one of the possible side effects was 'abnormal liver function tests'. Now in the process of ruling that in or out as the cause. Otherwise the doctors were also thinking Gilbert's.

Silvercatowner · 11/07/2017 20:43

Gilbert's syndrome here, too. Dr has also suggested 'sludge from a gallstone'.

augustusglupe · 12/07/2017 00:02

Another here with Gilbert's syndrome. My bilirubin is always in the 20s if ever I have blood taken.

Myrubbershoes · 14/07/2017 18:47

Thanks all. I managed to speak to GP today. She has said Gilbert's Syndrome, and its nothing to worry about - so that's a relief!

OP posts:
NK346f2849X127d8bca260 · 14/07/2017 22:06

DH and two of our son's have Gilbert's syndrome.

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