Hello, I always lurk and keep up, but I haven’t had much to add. I’m so sorry to hear about Chewing, and to hear about the woes of the other lacies too. Such a lot to cope with for so many.
Leslie, as ever a gold star and a massive gentle hug for keeping this thread going.
MrsRhod and Royal, fuckity fuck, I don’t know what to say, apart from I hope you get good results from your tests and quickly. NHS admin is a law unto itself.
As an aside, I have suffered with horrendous bleeding for over a year, I had a rubbish gynae for a while who misdiagnosed me, it’s taken ages to get a proper diagnosis – fibroids – and a referral for embolisation. The last, slightly better, gynae I saw only offered me a hysterectomy, until I pushed (again) for an alternative. I am not up for any more major surgery unless absolutely necessary, so hopefully the embolisation will be successful.
TheFarSide, Wombat, Nicky and any other new lacies – hello. I’m sorry you’re joining, but you're in good company.
I was feeling somewhat celebratory yesterday, I’ve had my first normal blood results since January. I still have to keep taking iron, vit D, calcium, etc, but that was some good news. For a while it looked like Herceptin was causing heart problems, but everything is fine there. I had a bone scan and chest x-ray recently too, and nothing detected on either of them.
I veer between wild optimism and hopeless despair about recurrence. I’ve been taking part in a Maggie’s Where Now course, which has been good, and I’ve signed up for a mindfulness programme. I don’t suppose the Fear will ever go. I’m coming up to my first annual mammogram and check up, exactly a year after I was diagnosed. It’s not a nice feeling. But I feel good at the moment, I’ve got some real treats to look forward to, and I’m completely in love with my recently acquired cat!
Twitter, would you be able to have a port or a line? Apologies if you’ve already considered and dismissed it, but I was so glad I had a PICC during chemo.
Love and hugs and
to everyone.