Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Non Hodgkin's lymphoma

3 replies

Fishface77 · 01/05/2017 11:53

A close relative has been diagnosed with non Hodgkin's lymphoma, it's come as a huge shock.
There is lots of info out there on the internet but what questions should they ask the consultant when they meet with him?
Thanks

OP posts:
FreshsatsumaforDd · 01/05/2017 12:08

Flowers It is an enormous shock and your relative is about to enter an unknown world.

My Dd was diagnosed over 6 years ago and was treated as a teenager. Her treatment was long but I think that the protocol for adults is different, depending on the exact type of Lymphoma. It is overwhelming at the start, and I felt that we had no choice but to just go with the treatment and deal with the result as it unfolded.

Some of the hospital staff seemed very matter of fact to us as they deal with this everyday, where for the patient and family, it is all new.

The McMillan site has very good information.

Fortunately Dd seems well, with very little residual effects. I hope that your relative has a similar good result. Take care.

Ktown · 01/05/2017 12:13

Hi
I am involved heavily with the lymphoma association
I do think they are good for patient information
Take it easy with the reading as there are many types

AnnieOH1 · 01/05/2017 12:20

The lymphoma association produces a lot of great literature including a booklet full of questions for the patient and their family to ask the consultant.

The two questions I would need an immediate answer on are:

Which subtype?
What stage?

My husband had an aggressive diffuse enlarged b cell in 2014 stage 3, he was not expected to live 6 months and in fact after second chemo not expected to live the month out. But he is here, and is getting better.

Looking back, keeping a journal would have been invaluable for my DH but he was too unwell to do it. It has really affected his memory but that is a combination of late diagnosis and the RCHOP therapy.

Good luck xxx

New posts on this thread. Refresh page
Swipe left for the next trending thread