Hypermobility questions

[Kelly1978]

I've posted this is sn, but thought would try here too, since not everybody checks special needs now.

We finally got ds1 a physio assesment and she has said that he has hyperlaxity in his joints and she thinks that this also explains his other develpmental problems - due to tiredness and frustration.

I've been doing some reading since and I'm wondering if he may have hms. I tried some of the tests online and ds can bend his fingers right back, almost touch his arm with his thumb, touch the floor with his knees straight and hands flat, etc. He walks with his toes pointing inwards, and if he is stepping up high into something like the car, his foot bends completely and he stands on his ankles.

Would the physio have checked for that? If not, how would I go about getting him checked for that?

He's no longer bad enough for physio, so we won't see her again, though she said he should have had it earlier on. He will be having OT.

bump

Hi there. Not quite the same but I have hyper-mobility syndrome. I will have had it all through childhood although it was only diagnosed as part of something else as an adult. I don't think in itself it is anything to worry about although I think your DS should be discouraged from over-bending the joints (I know as a child I thought it was cool to show my friends what I could do with bending thumbs/arms etc!) because the whole point about HMS is that the body doesn't protect itself from over-stretching and so you can more easily damage a joint from over-extending than someone who doesn't have HMS. Can you go back to the GP and if necessary get another physio referral - I see a physio to teach me to do daily tasks differently to reduce strain on the joints, but I'm not sure how much benefit this would be to a child.

I'll follow this with interest as my DD aged 12 seems to have this. Can pop out her shoulders and knees at will. Holds both her hands above her head and the shoulders fall out. She is extremely tall for her age and it may be worse at the moment because she is growing (7cm in less than a year at last count). Am taking her to the docs next week as I frightened the life out of myself reading about it on the internet.

how did you get diagnosed weegle?