Can you tell me about MS please?

[ExplodedCloud]

Nobody has actually said MS to me yet but all the words they have said are pointing that way and I have MRI and neurology appointments booked.
My foot drags occasionally and I have numbness in one extremity, reflex oddities and my bladder is a bit temperamental.
I know nobody with MS. I'm late 40s with dc still at primary school. I work (desk job).
Can you tell me what life is like with MS please?

Hi everyone, so from reading this thread ive learned that there is different kinds of MS...who knew ? Ive gave up googling it, it seems conclusive to me but i could be wrong, ill just wait to see what the neurologist says. Im trying not to torture myself

Thanks for the offers offhand holds and p,
Ms very kind people it means a lot. My symptoms I went with aren't really bothering me too much but it's kicked off some horrendous health anxiety. My mum was intensive care last year which she did survive but it started off some anxiety. I was just getting to grips with that over Christmas but it's back with a vengeance now. I was doing quite well beg of week with diversions keeping busy and walking but go gave me some diazepam yesterday tried some this morning as husband off and Id spent all morning retching . It's helping a bit. I don't what are symptoms and. What's the anxiety now, I'm tempted to look on Ms website it worried it might make me worse. I actually work in nhs so that's making me worse too but on a positive note one of our staff has had Ms a number of years and you wouldn't know apart from she days off for infusions and odd spell for fatigue. I'm 45 btw. Love to everyone on the thread thanks for being here.

TheClaws this was my attempt to stay away from Google . I'm in a positive place right now. I have told a couple of my closest friends who have been lovely now and I'm OK.

Stick I don't like uncertainty! I can cope with where I am but when I started this it was all 'Oh there's something significant' but I needed to ask questions! My GP has been good and we've had two chats where I've had specific questions and he's called me for a ten minute chat that has helped significantly. Is that an option?

indie I have had anxiety for years. I have had sertraline in the past which is good but I don't like the blanket approach. Propananol works for me when I feel the panic rising. And knowing that one tablet can still the tide of panic somehow helps me to step aside from it.
I'm glad your DM came out of ICU! Hope she's doing well?
I have diazepam for flying so I used it for my first MRI and I will for my next one. I try to avoid anything habit forming as an ex smoker - I'm a bit hopeless with anything addictive
Reading the responses to this thread have helped me get it in perspective too. It's a bit shit but it could be so much worse!

Cloud I'm thinking of you and hoping you get results or at least answers that you need to be able to move forward with a diagnosis or reassurance that everything is okay.

I clicked on your thread as I've been googling my recent symptoms and I'm seeing MS again and again. I'm going through an awfully stressful time so I'm hoping it's all just down to that, but I've been getting "attacks" where I get lightheaded and dizzy, blurred/double vision and generally feel pretty spaced out, plus numbness in my left arm. Initially the numbness was only when I had these "attacks" but as of Wednesday this week I had shooting pains down my arm, followed by a panic attack a few hours later and since then the numbness has been constant. I went to Minor Injuries on Thursday and they did a neuro test and checked my reflexes and said that my reflexes in both my arms and legs were "brisker" on my left side than the right (the side of the numbness). They advised me to be seen at A&E for a CT scan. They did a more in depth physical exam and I realised from that that the numbness extends down my left leg as well. I also remembered that in February this year I injured my foot just by walked on it after it had gone numb for seemingly no real reason. So they did the CT and that came back clear and they have said that they think it is a type of migraine as I have a history of migraines, although this is nothing like the migraines I have had previously and these "attacks" are happening 2 or 3 times a day. I've decided to keep a diary of them now to try to see if they are stress related or if there is any common factor between them. I'm also going to go to my GP this week and mention all of this and see what he thinks. As I'm currently being treated for depression I think he'll most likely dismiss it as anxiety/stress but I'd like to rule out anything physical before jumping to that conclusion.

Sorry, I didn't mean to take over your thread! Just wanted to share that I'm going through similar and it's a worrying time.

Had my head MRI last week. Will be a while before any results.
Think I may have to chase up some advice from the consultant though as I'm not sure what's 'normal' and what's not!

Hi everyone, just in case anyone missed it there s new support thread called ms stuff which may be helpful.

I presume that's in the sparkly new Autoimmune section :)

Hi everyone, just in case anyone missed it there s new support thread called ms stuff which may be helpful.

Can you link to this please?

I have had MS for about 5 years but only got a confirmation of my diagnosis just over 2 years ago.

I was having weird sensory issues. Tingles up and down my spine. Odd sensations in my legs. Trembling hand. Foot drop. Numbness in the balls of my feet. Difficulty walking and keeping my balance....and I'd hit a brick wall of fatigue every afternoon. I was working full time doing a very physical job.
I decided to make some needed changed in my life re diet and exercise and my symptoms reduced to almost nothing.

The process of getting diagnosed was frightening. I was imagining all the worst possible outcomes.

I had a lumbar puncture to confirm the diagnosis and the lumbar puncture has caused me more problems then my MS has! (CSF leak)

My MS has remained stable, throughout all the problems associated with my CSF leak.

I've reached a stage now where I don't freak out when my hand trembles a bit, or I stumble and think I'm going to have a relapse.
Apart from all the CSF leak shit, life is good.

It has taught me to appreciate what I have here and now and not dwell on the negatives.

I'm 46 and not currently on any medication for MS.

iwasagirl my MS symptoms were initially dismissed as anxiety symptoms......I was very anxious. I went to counselling and my anxiety improved greatly but I still had "odd" symptoms so went back to the GP.

If you feel something isn't right, stand your ground.

Just thought i would update you ladies, i was diagnosed with relapsing ms this afternoon. I feel okay about it, happy that ive got some answers :) ive been referred to an ms nurse but that takes about 3 months to get an appointment.

Feeling quite positive about everything now.

TheStick welcome to the club! My one bit of advice to anyone newly diagnosed is do not Google! Take each day as it comes just now, be kind to yourself and don't expect too much. It's hard at the beginning but you'll find your own level and routine with MS. Take care

stick. Glad you have the answers now and if it's going to be MS, best it's that!
Very frustrating about the wait for the nurse though.
I have a couple of weeks to go before I'm back to the consultant.

Thanks. Im fine with not googling, i did all my googling before i was diagnosed. Im just going to see what happens and deal with stuff as it happens....no point in doing anything else really .

Hi did you ever get to the bottom of it? Please give us some update.