NHS Bureaucracy - anyone fought, and won?

[losty]

aaaaaarrrrrrrgggggghhhhhhhh

I am so fed up of being passed from piller to post in the NHS. You see one consultant who doenst know what the other has said. You see another, who cannot make a decision without speaking to someone else. You try to ask their advice and tell them what you want to happen but they insist on referring for yet more tests. And no one seems to accept that it is your life they are plying with.

I am sooooooo pi$$ed off with the whole damn system.

Anyone fought the system and won?

I AM VERY angry]

I have been fighting the system for 7 years - I am not sure if I have won but I have learnt a lot along the way. Yes, it is true, you are shoved from pillar to post and back again. The one time we really, really needed the NHS, it let us down quite badly.

When it came to the most recent time I needed the NHS, I managed to make the system work for us. Perhaps that is all one can hope for. It is practically impossible to "beat" the system - but you can make the system work in your favour.

thanks Mumofteens - I knew there wasnt really anyting anyone could say tbh - but I needed to rant. I will keep battling on I guess....

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My local NHS pride themselves in not making wait anyone for a referal for longer than 6m. 18m to be heard about DS's peanut allergy.

I brought all the evidence about it and still they couldn't make a decision. They mentioned about RAST tests, I took DS abroad to have them done as nobody was sure how to get about them. Then I was told they were not good (wtf?) that they wanted to do skin prick tests, just to tell me after 18m on that I was right all the way .

But I think that we finally succeeded, DS was finally given a prescription for the epipens, which was what we were fighting for.

however, I think my post may be irrelevant here because you may be talking about something completely different!

no not irrelevent chandra - its about fighting for the best possible care and treatemt -so all relevenat! (and I know about alergy stuff from my DSs - although this paticular moan is about my dh IYUKWIM)

It took 18 months to get a prescription for an epipen??????

There must be other ways to get the care we and our kids deserve.....

I have been "shoved" from consultant to consultant too, for an ongoing medical condition. That's not so bad, what's even worse is when you have to wait so long to see a "specialist", and it turns out you know more than they do!

coulnt agree more mm - the so called specialists dont have to live with it, do they?

And another thing, while I am moaning, are the so doctors getting younger, or am I just getting older? Someone I saw yesterday looked about 21. Tell me how they can possibly have the experience and knowledge at that age?

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I am feeling very let down by the NHS right now...

Took DS to GP last week about his problems. They told me they would ring the hospital and make an appointment for him for within two weeks to see a pediatric neurologist. They also mentioned admitting him that day.

By yesterday afternoon I still had not had an appointment so I thought I would see if I could make an appointment to see the specialist privately.

So I emailed him, and he responded right away and said that he would ring me this morning to schedule an appointment.

He did ring me and we agreed on tomorrow afternoon. He then rang me back and asked me if I had health insurance. I don't have any. So he told me that he would try to make an appointment to see DS at the NHS hospital.

Still no word from him.

How unfair is it that if I had PHI he would see DS tomorrow, and how unfair is it that he has made the decision for me that I can't afford to pay myself to find out what is wrong with DS?

Now I know I am extraordinarily lucky that I can afford at least an initial consultation, but I really feel that he has made a decision on by behalf, to the detriment of my DS.

jelly I agree biut it never gets me anywayu - I know th sustem better than most and even I cant fgight it

oh I am ok jelly - had had a bit too much to drink the other night (understatment) so was a bit vocal. But I am still pi$$ed of whit it all tho.... and it will only get worse not better