anyone else out there with Narcolepsy?

[EllieKwithaHUGEbump]

is there?

I know someone who has/had this condition. Only really have Christmas card contact with her these days and last I heard, she had recovered from it. Fascinating condition though and a total pain to her at the time when we were closer. She could collapse at a second's notice with an attack and be unrousable, yet was fully aware of what was going on.

Do you suffer from this too?

i do indeed! not cataplexy tho which is the attacks you describe. and it's not something you can recover from, tho it can be managed with drugs

Just being nosey here, but how does it affect you EllieK? Did you see the item on morning tv about the girl who was affected every time she found something funny?

that's cataplexy, usually goes alongside narcolepsy but not in my case, i'm very lucky.

i just find i need to sleep way more than anyone else and cannot force myself to stay awake.

it's worse when i'm getting a cold, can sleep for days if ds isn't here

Oh - she may well be managing it with drugs - it's a long time now since we met up and we didn't talk much about it then other than to say she rarely suffered any attacks anymore, but we were close many years ago and she suffered many inconvient attacks including one in my car when she was coming to mine for a sleepover.

How does it affect you?

oops - x posts.

Interesting programme on now about this.

BBC1. Sleep clinic.

am watching

dh gets night terrors and i do the wiggling legs thing (ssshhh don't tell anyone)

The woman featured suffered exactly like my friend did.

Poor man - it's like one of those things you set on top of a piano to keep time! (Poor wife too).

I do that wiggly leg thing, but just with my feet, I wake myself up with it sometimes, my feet are always going round in circles. Tis odd!

Message withdrawn

airy - i now feel more normal, thank you x

yes me, sorry for being late but if you are still out there I've just been diagnosed