I am the desperate Mum of a 13yr old boy who has been ill for months. Wakes up feeling sick, produces a tiny bit of bilious sick and returns to bed. For several weeks had pain in his lower left belly/groin. Al undiagnosed. Hes had all the blood tests, now due to see paed. recently took him to A&E near my Dads, they found traces of urine in his blood, but nothing to explain the nausea. Gave him painkillers and the pain subsided. Returned to school after 4 weeks off.. Huge relief all round. A week later hes back off school again with this 'sickness' Wont do anything to help himself, wont even try to get up, no matter what we try. Lolls about all day watching TV but seems to be able to eat. He has been like this on and off over the last year.There is a history of auto-immune disease.. asthma and excema for him, more serious for his half sister.
But I honestly don't know what to think because our situation is complicated. I work away from home during term time. This enables me to earn a living, care for my elderly Dad and be at home during school hols and half the week as I work 3 or 4 days a week. Its not ideal I know but its a needs must situation and we have to get on with it. Or become homeless and put my Dad in a home. So I cant help thinking this is a protest. Apart from that when he's well, he seems fine about it as is his sister. He is an incredibly stubborn kid and will cut off his nose to spite his face. Its all set up in school for him to have a time out card so he can leave the class and they will call me or Dad. He says he doesn't trust us to pick him up because once Dad took nearly an hour to get there. Which seems unreasonable to me. So now we're at a stand off because he wont even try. Wont go in this morning even though I would have been close by to pick him up. Hasn't even tried getting up before deciding not to go. I told him he would not be allowed on his computer if he didn't make some effort, but no. Hes refusing to go for the tests at the hospital now.
I swing between feeling sorry for him and feeling cross. As a family we really need to pull together but have I betrayed him? I feel so guilty and terrified its my fault but I don't have a quick solution to the problem and I really don't believe that what I do is that bad, bearing in mind how much time I can be at home.
I am at the end of my tether, its so hard, working away, driving for hours, caring for Dad, then spending every Friday at Docs, hospital etc and worry worry worry about DS.
I don't know what to think at all any more, After this rambling message I would be surprised if any one does but I would still appreciate your opinions.
Any other Mums that work away from home? People are horrified when I tell them and I'm sure ther will be lots of 'I couldn't do that'. But sometimes you have to make compromises and your choices are limited.