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Activity leading to tiredness and fever

6 replies

OrlandaFuriosa · 14/10/2016 00:57

anyone know why this is and what I can do about it?

Since having radiotherapy for a non cancerous brain tumour over Christmas, ie a long time ago, if I have an active day, two days later I go down with low grade fever which is only dispersed by about 23 hours sleep and 6 litres of liquid. It's boring and disruptive.

Other than just sitting on an ever increasing backside, what can I do?

OP posts:
CFSKate · 17/10/2016 12:55

If you hadn't mentioned the radiotherapy/tumour I'd have considered ME. The title "Activity leading to tiredness and fever" made me think of M.E. and click on the link. The two-day delay between activity and feeling ill/exhaustion/flu like symptoms is also like ME.

OrlandaFuriosa · 19/10/2016 01:10

Thanks, Kate, I'll do just that. Never considered it before, though have had friends who have had it.

OP posts:
HeyMacWey · 20/10/2016 13:38

Yes it sounds like classic post exertional malaise which is one of the key features of me/cfs - a few friends had cancer treatment (both chemo and radiotherapy) have had terrible post treatment fatigue which sounds so similar to me/cfs.

Have you spoken to your gp? Had tests to rule out vit deficiencies?

OrlandaFuriosa · 20/10/2016 14:08

I shall do that. It drives me bonkers. In retrospect I've had it a long time but thought it was tumour related and then radio related. It's mild in the ME diagnostic criteria, but disruptive. When I read those criteria a light bulb went on with the descriptions if my life...

But could easily be vit related instead.

You have encouraged me to do something about this!

OP posts:
HeyMacWey · 20/10/2016 14:35

Good - glad you're going to get checked out - it could be something easily rectified.
In the meantime - rest when you need to - don't push yourself to do stuff when you're feeling fatigued.

CFSKate · 07/11/2016 10:50

I hope your GP was some help. Are you still feeling it is ME/CFS? There is a long list of things to exclude here
www.investinme.org/Documents/Guidelines/Myalgic%20Encephalomyelitis%20International%20Consensus%20Primer%20-2012-11-26.pdf

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