Thyroid - so fed up with battling

[TheGoodEnoughWife]

Hi, I have the auto immune under active thyroid (something beginning with H - can't remember actual name!) and have for about 9yrs. Was on 75mcg a day but have been having symptoms for last three years of being under active - hair loss, difficulty losing weight, tiredness, low mood, joint pain (only found this was a symptom after reading things on here).
I had been going to the doctors and having it tested and would phone for results and be told normal. When I eventually, again after reading in here, asked what it was/has been I was told it has been 10.4-11.8ish. Which I now know to be really low.

I already feel really down that I have been left with symptoms and just been told it is normal - surely results should be taken in account along with symptoms? If I was without symptoms then I could understand the fob off with 'normal' but I wasn't.

Anyway I spoke to two different doctors who both said they find patients function better if they are high teens, and after a test in Feb and me crying down the phone the doctor agreed to up me to 100mcg.

Just been tested again, still have symptoms, and been told 'normal' - result was 13! Other one was 2.4.

I just feel so frustrated that I am battling to just feel normal.

I asked for a call back from doc and receptionist just said 'but the doctor has marked as normal', then said they were full for call backs and I should call on Monday.

I am thinking of asking for a referral to an endocrinologist or making a complaint to the practice manager?
Any advice on what to say to doctor or what to do now?
Thank you (apologies for long post!)

I was about to start a thread on this, as I've been struggling with a load of thyroid symptoms - insanely dry skin, tiredness, brain fog, crappy nails, no longer need to pluck my eyebrows - but the tests always come back 'fine'. I did once get a dr who said he would treat the symptoms, but he retired without warning before I could get a prescription.

I've given up trying, but take iodine supplements as without them my feet crack open wider than the Grand Canyon, and I can hardly walk.

But am now resolved to do something as the final straw has been having a recurrent ear infection because of flaky ears, now going on for 9 months. Found a thread on here about it, and three people said it was only cured when they were diagnosed as hypothyroid. So that's it, I am going to get some medication one way or the other, as I can't keep taking antibiotics every three weeks for the rest of my life.

Am going to get my last results and then go and see the dr again, but am sure will be turned away.

So any pointers to FB groups etc would be much appreciated. Or just what to do next. TIA.

Get your results and post here.

Some thyroid groups I find a bit ott.

Health unlocked give good advice.

Fwiw, my heels get better when iron is good.

I was "fine" supposedly on 75mcg but felt awful. Start taking alternative days of 100/75. Within a week or so felt amazing. Normal. (Isn't that sad that normal felt amazing). Went back to GP and told them. They said OK let's try it for a few months and do bloods again. And yes, levels were higher but still within the normal ranges. I was lucky as my GP was happy to try treatment based on symptoms not just figured in a wide range of "acceptable".

I get lots of highly symptoms if under-dosed. Heavy periods, tiny hormonal spots on my nose, aches and pains. Get the level too high and yes, hot flushes, anxiety.

A few years on I am now on 100 for 3 days 75 for one. (100 every day just a tad too much).

Listen to your body. Insist your GP does too. To be honest they will not care too.much if you up your dose.. as long as you stay withib ranges. And if they don't see if you can change GP.