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I'm at a dead end with diagnosis before I've even started :( advice please re: fatigue...

81 replies

KeepsAwayTheNargles · 11/05/2016 09:56

I've been excessively tired for the past few months. If I have a busy day, the next day I'm totally wiped out. I work from home and can barely focus on it most days so that's suffering. I have basically zero sex drive - I can look at DH sometimes (or Kit Harrington...) and go "oooh, nice" but there's no motivation to do anything beyond that. I want to be able to focus on a book, I can't most days. I want to be able to do some yoga, I can't most days. I've dramatically improved my diet and started taking vitamins, which has made a marginal difference but not enough.

I had bloods taken last week which came back as normal, except for low vitamin D. When I had my initial GP appointment she said they'd test for everything physical via bloods, and if they were ok then we'd see if it was depression. I don't feel depressed, I feel frustrated and miserable that I'm so fucking tired. My work is suffering, my parenting is suffering (less patience) and my relationship is suffering - DH is lovely and patient but I want the energy and motivation for sex again!

I feel like because my bloods are normal I'm going to be given a choice of antidepressants or nothing. I'm not depressed. I'm frustrated and want some bloody energy to enjoy my life!

Does anyone have experience of this? Any ideas how I can avoid being fobbed off with ADs? I really thought the bloods would show something that could be easily fixed and now I feel like I'll be stuck like this forever :( any advice would be much appreciated! Thanks in advance for getting through reading my mini-essay Flowers

OP posts:
EustachianTube · 13/05/2016 14:58

mango, hello to a fellow sufferer! Actually the lower limit of b12 varies from county to county, where I am it's set criminally low at 120. In Japan they treat anything under 500. If you're not already in it, there's a really helpful FB support group for b12 def/pernicious anaemia, i'd recommend it.
sorry for derail! OP has said their b12 level was fine.

mangotango15 · 13/05/2016 15:19

Hi Eustachian! Wow, that limit is really low, where are you?

EustachianTube · 13/05/2016 17:04

That's in Somerset, there was somewhere set at 110 I think. Bonkers.

KeepsAwayTheNargles · 13/05/2016 19:42

Thanks mango, my B12 is definitely fine -

Serum vitamin B12 446 pg/mL normal range 187 - 883pg/mL

OP posts:
KeepsAwayTheNargles · 13/05/2016 19:44

At the appointment we agreed that I'll take a high dose vit D supplement (that I'll buy myself as it's cheaper than a prescription) for 3 months then come back for bloods to check if it's rising. If this doesn't help then I'll ask for further testing then.

She didn't try to push ADs at all, recommended I do a course of CBT which I may give a go for unrelated reasons. Hopefully on the supplements I'll feel better soon, I will come back and update the thread :)

OP posts:
KeepsAwayTheNargles · 13/05/2016 19:45

She did say that apart from the vitamin D everything else is perfect and I'm very healthy!

OP posts:
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